I haven’t been following this chat, but saw a change.org petition shared on bluesky asking for Riley to step down. Incase it hasn’t beennshared...
New Documentary on Austrian National Television (45min) (In German) Much Suffering, Little Help – The Illness ME/CFS Trapped in an Invisible...
Yes fantastic read. Took me two or three goes with the brain fog but I really learnt a lot.
Now published as an Article in German....
Has it gotten better in the past couple months? I had to step away from it around 6 months ago because there was too much psychosomatic stuff,...
You’re welcome to create one, the way it was shared was ambiguous to me, and I wasn’t sure if it was a new initiative or something old resurfacing...
Posts split from United Kingdom: News from #MEAction Network UK Note: this is not an MEAction UK initiative. Rather it is the initiative of Adam...
Open letter by MEAction UK asking for use of stricter criteria in research. (Basically asking to stop using Fukuda)....
A lot of people in the local facebook groups seem to be convinced they will magically recover if they get send to a rehab clinic. The...
Joanne Hunt has published a lot of stuff in this vein. More focusing on structural, social, and political issues, but also often touching on the...
Swiss national radio had an 7 minute “investigation” that from the description seems good. (translated from german): Long Covid: Incorrect...
I’ve noticed some (especially US based) charities have fundraising times when they say your donations will be matched (2x, 3x etc.) such as the...
I didn’t venture far into that thread but Chadler being an author made me very skeptical.
I realised there wasn’t a specific thread for the link between BPS/psychosomatics and sexism. So I’ve created one. The thing that prompted me to...
I think they are a major problem, but they aren’t worse than BPS, for the simple reason BPS theories have led to countless human rights abuses,...
Rephrased without psychsomatic assumptions: Functional disability preventing normal social activities, post-exertional malaise, and self-reported...
Kudos to the authors for not saying ME/CFS = Fatigue. They used CCC, with the DePaul questionnaire as criteria. Interesting study.
I got a reply from someone working on the study. The depression questionnaire is the Patient Health Questionnaire-8 (PHQ-8) Which is has already...
A while ago, @forestglip found a reddit thread related to Lupus, where one of the most liked answers contained a description from a Lupus patient...
I thought It would be interesting to have a place to collect descriptions or accounts of living with other illnesses that include phenomena...
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