Interesting how high PEM is, and how low loss of sense of smell is. It really shows how perceptions of long COVID are not formed by patients...
Depending on what happens might test my preference for Celtic football club ahha. In all seriousness, congratulations!
Wonder if this holds using deconditioned/unhealthy/sick controls.
I used visible (which is where the data for this study comes from) for about 4 months and I think there’s two problems with a study like this: 1)...
Since CBT is “effective” for fatigue in cancer, I guess cancer is “not real but psychological”. The efficacy of cognitive behavioral therapy for...
So basically if I get this right? They did a playacting test, and rated people by how stressed they think they got in the test. Then, they saw...
The way I see it medicine is not a science. It’s a heirarchical culture formed around interpretions on how to apply a science “huaman biology”. In...
Can’t say I’ve tried it (although the lamp above my bed emits red light because I find it less tiring than white light), but I imagine many of the...
Out of my personal experience with doctors, not including those I specifically chose because of knowledge of ME. Sample is about half split...
I can’t believe they can do an entire review of the literature while holding onto the asssumption Long COVID is a single condition and not a bunch...
I won’t make any comments on the various theories, but another way to interpret this, would be that not everyone with ME has orthostatic...
Sorry I wonder if you made a mistake or I misread your comment. You say they found similar levels of hypertension but then go on to say it is...
Yes. Ignoring the fact most those studies are using diagnostic criteria where many of the patients probably don’t have what we consider ME. All...
https://thesicktimes.org/2024/11/26/dont-give-up-hope-long-covid-advocates-and-researchers-say-crucial-work-will-continue-under-trump/ “Don’t give...
In my experience I have an extremely hard time stabailising at a level where I don’t produce PEM. To the point where in the vast majority of cases...
so what this study is saying if I understand correctly is that current ways to measure blood flow problems to the head might be missing out on...
@Creekside I understand what you’re saying, but I never meant to say every PEM bout leads to permanent worsening. But a common theme in people’s...
Does that matter if there was little to no improvement in functionality or symptoms?
Sorry to hear that. It seems to really be a trend these days to say trauma causes physical illness. My partner was reading a book she told me...
Yeah. The only issue I have of the use trauma in our case is it seems to come with the connotation that it leads to irrational behaviour. I...
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