I’m guessing this study tells us absolutely nothing because they used anxiety and depression questionnaires that have ME symptoms?
Yes. For an organisation that’s mission includes open data sharing, you’d have expected them to be a little more data sharing outside their...
I get what you’re saying but it should be a priority to share all the data we have, even negative. No need to be like Al-Aly who consistently...
So for you GET would help? Like the more you do something the easier it gets? So if you push yourself a bit you get symptoms but then you have...
Because the majority of donations to Ron’s Lab seem to go towards expensive equipment. Do we have a guarantee that equipment will keep on being...
Thanks for this thread. I never realised she was problematic until checking it out. Have unfollowed her.
It’s the fact that if you do more than you currently are doing not only will your symptoms worsen, but the threshold for your symptoms worsening...
They can’t be serious this would be hilarious if it weren’t so depressing.
Probably WE&ME since they seem to be good at making an impact and they are close to me geographically. Plus they are a charity that seems to...
Worth noting that nominee for Secretary of Health, RFK Jr, is a supporter of these “therapies”, despite them underperforming RCTs, and claims that...
Yes Solve ME seems to do stuff like this. They also hire annual lobbyists to the US government. I think they are the most institutionalised and...
@forestglip this might interest you. You were talking about plans for a machine learning model to predict PEM based on facial expressions if I...
Excellent post. It really highlights how little basic biomedical funding there is for ME, while still showcasing some fascinating studies we will...
It feels like in practice peer review serves more as an enforcement of “bias” and pet theories of the current group of “experts” than it does to...
And Chronic Fatigue syndrome was defined as long term unexplained fatigue 20 years ago. That doesn’t mean it was an accurate definition, or that...
To me, PEM is far from only a worsening of symptoms. PEM feels like a worsening of the underlying disease, and importantly, when in PEM, my...
This is really interesting. What could be the meaning of such poor performance in PVFS? That it’s a near useless diagnosis that jumbles up too...
I feel like the discourse, the research, and pretty much everything and anything around Long COVID and ME focuses on the “symptoms” and not the...
The “conclusions” Evidence suggests preprints and final articles actually differ surprisingly little, but improvements can often be made. The...
I just completed the follow up and was a little disappointed. Again, 0 mentions of PEM, (although for symptoms that “come and go” they did have...
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