For a properly done trial, what could they have used? Would it be ethical to use something that risks causing a skin ulcer as placebo?
The second comment especially sounds exactly like a manifestation of PEM!
That does sound like an interesting proposal. Sorry I tend to sometimes skim these more speculative threads but rarely read them more thoroughly...
Yeah. It was never their official account, but some of their loudest voices who organised the attacks. Anyhow, I’m pretty sure the death threats...
I’m not sure this is who they are referring too. But the Long COVID Action Project people, who are big on twitter, (Believe Long COVID is a...
Maybe if the medical system actually worked and gave a damn that wouldn’t have happened like this. What do they expect people with real diseases...
Yuppie Flu, Shit Life Syndrome, Tik tok disease. It’s not us who are jumping on “disease trends” because we see them, it’s them who jump on...
Did Solve ME fund this? I wouldn’t be suprised after the “stem cell” thingy they funded.
I was thinking about how people who have benefited from drugs tend to be far more likely to share the results. Which made me think I should share...
How do these people get into powerful positions in patient charties?
Possibly should add Austria in the title so it’s clear.
Honestly I’ve found paracetamol to be far better for pain. CBD mostly helps relax me, but doesn’t change much else, it’s like a strong camomile tea.
[I was told this survey is quite long, like over an hour, but can be paused at any time. It’s also open to people outside of austria]...
It feels like a sort of ruse to make a rehabilitation and then claim it should make people recover so that if they don’t recover it’s easy to...
What’s scary is if more severe people truly believe it works, they will risk lots of PEM and permanent worsening just to try the therapy.
If he really becomes in charge of the NIH I will be devastated.
I found a quote from an article he wrote last year that touches on Long COVID. He minimises it’s impact and says it’s mainly “post ICU syndrome”...
Can’t access WAPO. But this dude would be a disaster for Long COVID. Looks like he’s a “herd immunity” anti-masking advocate who was anti...
Honestly I doubt companies will shy away from doing clinical trials on drugs they have patented, just because the funding they receive from...
But doesn’t the public health system end up atleast partially funding a lot of these trials done by private companies? If that’s the case, I...
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