A lot of us are honestly extremely desperate. Living in inhumane conditions. Whether or not it is true, I think it is natural for those of us in...
Why does it feel like often the more attention we get the worse things get.
I had a look through some of the questions and I’m not very impressed by the framing. Some of the questions seem to be framing...
I would say that’s concerning, but honestly given Musk’s constant barrage of ableist and sometimes eugenicist remarks, I’m just going to be glad...
I definitely have that. But then again I doubt Sjörgens could cause me to completely lose the ability to communicate or tolerate light and sounds...
In Austria and Switzerland, a lot of doctors don’t seem to work by outright diagnosis, but more by saying you probably have X. And then treating...
Axios Americans with disabilities warn protections are vanishing in Trump's DEI rollback Rest of Article
According to what? A lot of people are diagnosed according to old definitions or looser definitions like post viral fatigue syndromes. What is...
Yeah it a pain haha. But life goes on…
I’ve had it for a year and a half now…
Same. Although I was wired as hell to manage to get to the approintment. I think that is a massive confounding factor. That’s actually the...
Yep. The way I’ve described my cognitive problems is it’s like my RAM (computer short term memory) was reduced by 95%. So in general my thinking...
The whole thing was very vague. I filled it out and stressed a couple things, ie. the centrality of PEM and that PEM is a worsening of the...
Free and Open Source. Ie. the software isn’t proprietary, anyone can distribute it share it edit etc. It’s public domain. Usually FOSS projects...
This is so cool @Aaron
I think Anki has phone apps and even a web interface. It’s a FOSS project.
Is MEA an acronym for the ME Association or ME Action. I know you mean MEAction in this case but now I’m questioning whether I’ve been...
Truth doesn’t matter anymore. You can just say whatever you want. Nothing is verifiable. If seen from a Foucaultian lens, one might say the...
Definitely. Or perhaps being ill has caused people to change their diets. (Reduced energy to cook, gastrointesintal symptoms etc)
What Wüst paper? Is he attempting to replicate his long COVID findings in ME?
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