One of the things I’ve learnt with ME, is being an “expert” can sometimes make you worse off to explain it. When you are an expert and have been...
I noticed this too. When I switched from a liquid diet to most solid diet I gained 10kg.
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Cool to see better subtyping of LC cohorts.
Isn’t that the company Sharpe infamously made a presentation to claiming George Monbiot was “spreading” long COVID, by writing about it.
Not going to lie it’s pretty distressing and scary from the outside view too, so I can’t imagine what it feels like from the inside.
Seems to be a targeted erasure of long COVID. Scary stuff.
I loved @forestglip ’s idea of creating a massive database with all the findings from biomedical studies. Although it would obviously be a massive...
The only one I disagree with is “We don’t have any treatment for your illness”. I don’t know why it’s on this list. I wish I was told that early...
Where I live, there has been near zero lectures on ME/CFS or Long COVID, so it’s not even an hour lecture, but more like some quick opinion...
Psychosocial stuff? Or they give people beta blockers et al as needed?
The effort preference is the same thing as the psychosocial ideology has always been. They see our high levels of disability and quick...
From what I can see, China does quite little basic biomedical research, they mostly focus on treatments (usually a mix between traditional herbal...
Does the rest of the world have any plans to step up biomedical research funding in response to this? (Looking especially at rich western...
The Sick Times Now Offline: Government Resources about Long COVID as a Disability This is scary.
Also excludes severe people with the interview format.
None of those. Just helps with associated adrenaline and itchiness.
For me: Can reduce some symptoms — does not reduce the deterioration of functional disability.
I think there isn’t anything saying lyme disease can’t trigger ME, and bacterial infections reportedly triggering ME is definitely not unheard of....
Subjective data is obviously to take with grains of salt, but even if we had activity level counters or something (think smartwatch data) it still...
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