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  1. JaimeS
    Post

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    Complete bullsh!t thinking?
    Post by: JaimeS, Feb 1, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. JaimeS
    Post

    One-sided weakness

    A very clever endocrinologist tested me for this mutation straightaway, VERY early in my diagnostic path. I was seriously impressed. [Edit:...
    Post by: JaimeS, Feb 1, 2019 in forum: General and other signs and symptoms
  3. JaimeS
    Post

    One-sided weakness

    Probably not -- the other symptoms of hemiplegic migraine don't seem to match up. Thank you, though!
    Post by: JaimeS, Jan 26, 2019 in forum: General and other signs and symptoms
  4. JaimeS
    Post

    MPs put UK universities on notice: Report results from clinical trials or be called to parliament to explain why not

    My thoughts exactly.
    Post by: JaimeS, Jan 26, 2019 in forum: Research methodology news and research
  5. JaimeS
    Post

    METRIC (UK) Royal College of GPs' online course on ME/CFS

    Have you talked to any major MEpedia contributors or developers on this? It might be that we would need more editorial control than is generally...
    Post by: JaimeS, Jan 26, 2019 in forum: Training courses
  6. JaimeS
    Post

    METRIC (UK) Royal College of GPs' online course on ME/CFS

    BPS has been very good at presenting themselves as experts. To people who haven't done the research, may all look very proper and official, I'm sure.
    Post by: JaimeS, Jan 26, 2019 in forum: Training courses
  7. JaimeS
    Post

    Self-Compassion and Adherence in Five Medical Samples: the Role of Stress, 2018, Sirois and Hirsch

    "...women tend to be less adherent to some medical regimens than men (Manteuffel et al. 2013)" Riiiiight maybe doctor attitudes in the clinic...
    Post by: JaimeS, Jan 26, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. JaimeS
    Post

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Maybe out of someplace else... ;)
    Post by: JaimeS, Jan 26, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. JaimeS
    Post

    Low dose hydrocortisone as a treatment for ME/CFS

    ??? Oh, you mean some kind of processing problem? That's possible, but I definitely wouldn't see it as the only or major possibility I don't think.
    Post by: JaimeS, Jan 25, 2019 in forum: Drug and supplement treatments
  10. JaimeS
    Post

    One-sided weakness

    I've now received two identical pieces of input from others: My knee might be subluxing a bit, depositing me on the ground. It's instinctive to...
    Post by: JaimeS, Jan 25, 2019 in forum: General and other signs and symptoms
  11. JaimeS
    Post

    Low dose hydrocortisone as a treatment for ME/CFS

    Yeah, I was prescribed hydrocortisone. NOT GOOD. I've gone into it in depth before, so I won't bother revisiting in depth, but I was not...
    Post by: JaimeS, Jan 25, 2019 in forum: Drug and supplement treatments
  12. JaimeS
    Post

    One-sided weakness

    Thanks, @BeautifulDay ! Good to know at least I'm not the only one.
    Post by: JaimeS, Jan 24, 2019 in forum: General and other signs and symptoms
  13. JaimeS
    Post

    One-sided weakness

    Sorry, it's very frustrating, I still have Stanford logins and it keeps reverting to them... even when the article is free! I will find another...
    Post by: JaimeS, Jan 23, 2019 in forum: General and other signs and symptoms
  14. JaimeS
    Post

    One-sided weakness

    Yes and that's why I've suspected this for myself in the past... I've always found it a lot tougher to initiate movement than to keep going once...
    Post by: JaimeS, Jan 23, 2019 in forum: General and other signs and symptoms
  15. JaimeS
    Post

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Yes, wish more would grok this. "Random fatigue we can't explain and literally no other requirements" is Oxford, and it's the criteria used by...
    Post by: JaimeS, Jan 22, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. JaimeS
    Post

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    stories like this are endlessly astounding. How does this just pop out of anyone's mouth. Both intellectually and emotionally blinkered thing to say
    Post by: JaimeS, Jan 22, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. JaimeS
    Post

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    I hear the Defense position is open.
    Post by: JaimeS, Jan 22, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. JaimeS
    Post

    One-sided weakness

    I have been leaning towards channelopathies as well.
    Post by: JaimeS, Jan 22, 2019 in forum: General and other signs and symptoms
  19. JaimeS
    Post

    One-sided weakness

    Thanks for all the replies, everyone. To be clear, if I have very bad neuroinflammation, I do get tingling and numbness on my face and feet, and...
    Post by: JaimeS, Jan 22, 2019 in forum: General and other signs and symptoms
  20. JaimeS
    Thread

    One-sided weakness

    OK brain trust! :hug: My own thread about how pwME ignore symptoms that may be something else has shamed me. [MEDIA] Apologizing in advance for...
    Thread by: JaimeS, Jan 21, 2019, 65 replies, in forum: General and other signs and symptoms
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