I hope there's a follow-up study in that. When you think about it, in order to do that, they will have to query thousands of people (and their...
True enough!
Absolutely. These are the ppl rich enough to have insurance and -- probably -- determined enough to keep going back, thru multiple misdiagnoses.
I too have heard the weird onset divide, where in the UK (and sometimes in older US studies) they'll say 45 is the median age, and then more...
We're not looking at age of onset here, we're looking at prevalence. So to me, it absolutely makes sense that as more people are diagnosed and do...
But we've never used Oxford in the US. The only reason unexplained fatigue could be categorized as "CFS" is sheer laziness here. Our weakest...
No, I'm wondering why Kaiser won't use the ME coding.
Whoa, seriously? That's out-and-out weird. Any rationale?
I don't even know where to begin, so I'll just mention one thing that, for reasons unbeknownst to me, is so often left out of both their and our...
I believe Rivka has been organizing this. She's an absolute powerhouse. Ron Thompkins was at the last Stanford symposium. It should be...
Disheartening. Guthridge is a good egg, though.
https://www.s4me.info/threads/who-said-dont-bother-testing-patients.6532/
Might be of use: https://www.me-pedia.org/wiki/Intracranial_hypertension#Idiopathic_intracranial_hypertension There was a paper on ME and IIH...
And some 'disambiguation'-style input, like "people often say X" but in actuality "the reference really says Y".
I did start a Google doc for frequently-referenced facts and ideas. Anyone is welcome to contribute, use, and share!...
This happens in all complex chronic illness, and physicians do it, too. I have heard so many anecdotal reports that I know it's "a thing" but I...
Can I suggest you tag this with who-said? It's what I've been using so that these types of posts are easy to find....
That's a new one on me; I like it. :D Mike VanElzakker recently posted this one: [IMG]
Good question. My immediate thought was to wonder how this was all being received. My guess is that some of his colleagues -- the ones who've...
Of course it was...
Separate names with a comma.