1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 3rd March 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Search Results

Search Again
Page 34 of 39
  1. JaimeS
    Post

    Who was it that said being in support groups leads to poor outcome?

    AAaaaaahhh. :banghead::banghead::banghead::banghead:
    Post by: JaimeS, Aug 4, 2018 in forum: General Advocacy Discussions
  2. JaimeS
    Post

    Petition to ask government agencies adopt ICC

    The CDC's website promotes IOM criteria right now, which requires PEM. We may not like that this is the criteria chosen, but it's impossible to...
    Post by: JaimeS, Aug 4, 2018 in forum: Petitions
  3. JaimeS
    Post

    Petition to ask government agencies adopt ICC

    There was that recent paper that tried to characterize PEM more carefully, so that's a current effort.
    Post by: JaimeS, Aug 4, 2018 in forum: Petitions
  4. JaimeS
    Post

    Who was it that said being in support groups leads to poor outcome?

    I wish more could see this. Change doesn't happen through a snap of the fingers. This happens surprisingly often in papers. I'm one of those...
    Post by: JaimeS, Aug 4, 2018 in forum: General Advocacy Discussions
  5. JaimeS
    Post

    Who was it that said being in support groups leads to poor outcome?

    I'd need to see the passages in question...
    Post by: JaimeS, Aug 3, 2018 in forum: General Advocacy Discussions
  6. JaimeS
    Post

    Who was it that said being in support groups leads to poor outcome?

    :trophy@:trophy@:trophy@:trophy@:trophy@
    Post by: JaimeS, Aug 3, 2018 in forum: General Advocacy Discussions
  7. JaimeS
    Post

    The microbiome hypothesis: Lipkin's collaborative, part 1 (Simon McGrath blog)

    @mariovitali -- write a paper and publish it. You've been on this awhile -- you have devoted many, many hours to this. PM me and I'll help you...
    Post by: JaimeS, Aug 3, 2018 in forum: ME/CFS research news
  8. JaimeS
    Post

    High-fidelity discrete modeling of the HPA axis: a study of regulatory plasticity in biology (2018) Sedghamiz et al.

    At the very least, do no harm, eh?
    Post by: JaimeS, Aug 2, 2018 in forum: ME/CFS research
  9. JaimeS
    Post

    How chronic administration of benzodiazepines leads to unexplained chronic illnesses: A hypothesis, 2018, LaCorte

    Maes/Morris, wasn't it? [Edit: Nope, sorry -- Dr Pall.] Ditto. Never taken 'em in my life.
    Post by: JaimeS, Aug 2, 2018 in forum: ME/CFS research
  10. JaimeS
    Post

    Reduced glycolytic reserve in isolated natural killer cells from ME/CFS patients: A preliminary investigation, Nguyen et al, 2018

    Someone has to write the next grant -- and someone else has to approve it. Yes to the tiny PhD students trying to publish a thing -- and then...
    Post by: JaimeS, Aug 2, 2018 in forum: ME/CFS research
  11. JaimeS
    Post

    #MEAction - CDC revises its information on ME - by Jaime S

    Hey, folks. I added a pdf version to the article for those of us who like to print stuff out and read it off of the screen. Always intended to...
    Post by: JaimeS, Aug 2, 2018 in forum: General ME/CFS news
  12. JaimeS
    Post

    The putative glymphatic signature of chronic fatigue syndrome: A new view on the disease pathogenesis and therapy, 2018, Wostyn et al

    Good idea.
    Post by: JaimeS, Aug 2, 2018 in forum: ME/CFS research
  13. JaimeS
    Post

    #MEAction - CDC revises its information on ME - by Jaime S

    Yes; it is. Do we have peer-reviewed evidence saying so? :D
    Post by: JaimeS, Aug 1, 2018 in forum: General ME/CFS news
  14. JaimeS
    Post

    #MEAction - CDC revises its information on ME - by Jaime S

    Re: the Vitamin D suggestion -- Low Vitamin D correlates to orthostatic intolerance. I thought it was interesting, given that such a high...
    Post by: JaimeS, Aug 1, 2018 in forum: General ME/CFS news
  15. JaimeS
    Post

    The putative glymphatic signature of chronic fatigue syndrome: A new view on the disease pathogenesis and therapy, 2018, Wostyn et al

    Yeah, whoever's interested is welcome to PM me to join in for first discussions. Let's set it for beginning of Sept or something along those...
    Post by: JaimeS, Aug 1, 2018 in forum: ME/CFS research
  16. JaimeS
    Post

    #MEAction - CDC revises its information on ME - by Jaime S

    Multiple convos on this, which I will link @Sasha, but it boils down to: some of us have a 'neurotoxic' reaction to corticoids. Mine is the most...
    Post by: JaimeS, Aug 1, 2018 in forum: General ME/CFS news
  17. JaimeS
    Post

    #MEAction - CDC revises its information on ME - by Jaime S

    Fludrocortisone worries me, with the strange reaction 1/3 of us have to corticoids... rest sounds good though. :)
    Post by: JaimeS, Aug 1, 2018 in forum: General ME/CFS news
  18. JaimeS
    Post

    #MEAction - CDC revises its information on ME - by Jaime S

    We do plan on engaging in a more formal dialogue after checking out comments from the community; people had a lot of good ideas for additions....
    Post by: JaimeS, Aug 1, 2018 in forum: General ME/CFS news
  19. JaimeS
    Post

    #MEAction - CDC revises its information on ME - by Jaime S

    Thank you very much, @alktipping! As I say at the end of the article, I definitely leaned on other key advocates for context and ideas -- and of...
    Post by: JaimeS, Jul 31, 2018 in forum: General ME/CFS news
  20. JaimeS
    Post

    The putative glymphatic signature of chronic fatigue syndrome: A new view on the disease pathogenesis and therapy, 2018, Wostyn et al

    Haven't we all! Why don't y'all PM me and we can set up a time to discuss? If you're comfortable doing so.
    Post by: JaimeS, Jul 31, 2018 in forum: ME/CFS research
Showing results 661 to 680 of 762 Next >
Search Again
Page 34 of 39