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  1. JaimeS
    Post

    The putative glymphatic signature of chronic fatigue syndrome: A new view on the disease pathogenesis and therapy, 2018, Wostyn et al

    Yes, I've been wanting to do that for quite some time actually. There's a serious brain trust here on S4ME.
    Post by: JaimeS, Jul 31, 2018 in forum: ME/CFS research
  2. JaimeS
    Post

    The putative glymphatic signature of chronic fatigue syndrome: A new view on the disease pathogenesis and therapy, 2018, Wostyn et al

    Well. 'Toxic buildup' is kind of hand-wavey, ain't it? ;) There are a series of tiny studies on increased ventricular lactate in ME. When...
    Post by: JaimeS, Jul 30, 2018 in forum: ME/CFS research
  3. JaimeS
    Post

    PEM discussion thread

    Good point; cognitive stuff seems easier to resolve, whereas the physical function takes days or weeks.
    Post by: JaimeS, Jul 30, 2018 in forum: Post-Exertional malaise and fatigue
  4. JaimeS
    Post

    PEM discussion thread

    1) I get 'warning' neurocog symptoms first -- telling me to lie down and do nothing. I used to 'read' this as procrastination and it drove me...
    Post by: JaimeS, Jul 30, 2018 in forum: Post-Exertional malaise and fatigue
  5. JaimeS
    Post

    PEM discussion thread

    I've found that there are two supplements that help when I've overdone it: add more CoQ10 and use pH basic to combat lactic acid buildup. It...
    Post by: JaimeS, Jul 30, 2018 in forum: Post-Exertional malaise and fatigue
  6. JaimeS
    Post

    PEM discussion thread

    I'm going to go for adrenaline -- or else some neurotransmitter surge. The reason I am is that I react to a surge of cortisol -- even my own --...
    Post by: JaimeS, Jul 30, 2018 in forum: Post-Exertional malaise and fatigue
  7. JaimeS
    Post

    PEM discussion thread

    There is so much good here that I feel like I'm going to have to break this up into a few replies! <3 Nah. Twice I've been asked recently 'how...
    Post by: JaimeS, Jul 30, 2018 in forum: Post-Exertional malaise and fatigue
  8. JaimeS
    Post

    The royal society of medicine: medical stories and the public (with Stephen Fry & Simon Wessely)

    One of my favorite skits of his mocks those who use logical fallacies. My favorite one is a Frye and Laurie sketch where the pair of them skewer...
    Post by: JaimeS, Jul 29, 2018 in forum: Other health news and research
  9. JaimeS
    Post

    Weird appearing scratches without scratching myself

    I do recall that where I'd had a tick bite suddenly reappeared in that exact spot with a secondary exacerbation. Doc refused to believe me and...
    Post by: JaimeS, Jul 28, 2018 in forum: Pain and Inflammation
  10. JaimeS
    Post

    PEM discussion thread

    This is a valid hypothesis; I was definitely in 'rolling PEM' before I understood my disease. I generally don't crash, now; but when I do, there...
    Post by: JaimeS, Jul 28, 2018 in forum: Post-Exertional malaise and fatigue
  11. JaimeS
    Post

    Petition to ask government agencies adopt ICC

    You mean CCC not CDC, right? If not, I'm confused. ;)
    Post by: JaimeS, Jul 28, 2018 in forum: Petitions
  12. JaimeS
    Thread

    PEM discussion thread

    Posts on PEM moved from this thread as they had gone off topic. Only rarely it sets in on the same day; my experience is it starts the next day,...
    Thread by: JaimeS, Jul 28, 2018, 108 replies, in forum: Post-Exertional malaise and fatigue
  13. JaimeS
    Post

    Symptom diary

    Also, I think for posts you may need to separate hashtags w/a comma to make them show up as different things :)
    Post by: JaimeS, Jul 28, 2018 in forum: Home adaptations, mobility and personal care
  14. JaimeS
    Post

    Symptom diary

    Hi, @Emsho! For a long time I used an app. I didn't use it every day, but I did use it to keep track of unusual symptoms. It allowed me to...
    Post by: JaimeS, Jul 28, 2018 in forum: Home adaptations, mobility and personal care
  15. JaimeS
    Post

    K De Meirleir: Conference speech August, 6th:"Biomarkers which identify CFS/ME patients"

    .....SIIIIIIIIIIIGH.
    Post by: JaimeS, Jul 27, 2018 in forum: ME/CFS research news
  16. JaimeS
    Post

    Petition to ask government agencies adopt ICC

    There are authors of the IOM Report on that list...
    Post by: JaimeS, Jul 27, 2018 in forum: Petitions
  17. JaimeS
    Post

    ME Association: Dr Shepherd provides an update on antibiotic use in M.E. and highlights concerns about quinolones and fluroquinolones

    It would appear so: https://jnnp.bmj.com/content/jnnp/42/12/1073.full.pdf
    Post by: JaimeS, Jul 27, 2018 in forum: ME/CFS research news
  18. JaimeS
    Post

    Who was it that said being in support groups leads to poor outcome?

    You've got to wonder if they ever read these over before they published. Most people acquired their diagnosis BEFORE reading newspaper articles,...
    Post by: JaimeS, Jul 27, 2018 in forum: General Advocacy Discussions
  19. JaimeS
    Post

    Ketogenic diet

    This was what I did. For about a year I did as low-carb as I possibly could without being on traditional keto diet. I ate no fruit, no added...
    Post by: JaimeS, Jul 27, 2018 in forum: Other treatments
  20. JaimeS
    Post

    CDC Posts NEW CONTENT on ME/CFS (July 12, 2018)

    That's a good question. Spoiler alert: though I went to a conference to discuss the site in 2016, I haven't been involved in subsequent rounds....
    Post by: JaimeS, Jul 27, 2018 in forum: ME/CFS research news
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