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  1. JaimeS
    Post

    Golden hour (/month)

    I learned from a severe patient yesterday that she had actually *bought* a tanning bed. Wow!
    Post by: JaimeS, Mar 5, 2019 in forum: General and other signs and symptoms
  2. JaimeS
    Post

    Who said: don't bother testing patients?

    Sorry I missed this comment initially. This is really an interesting observation, actually. Was the initial tension because people in mainstream...
    Post by: JaimeS, Mar 5, 2019 in forum: General ME/CFS news
  3. JaimeS
    Post

    MEpedia and Internet Archive

    Thanks guys -- I passed this on to our MEpedia Volunteers Slack channel.
    Post by: JaimeS, Mar 5, 2019 in forum: MEpedia
  4. JaimeS
    Post

    Should there be a primer for employers?

    I came across a really, really good resource on this recently and it's made me consider precisely that. For everyone's edification:...
    Post by: JaimeS, Mar 5, 2019 in forum: MEpedia
  5. JaimeS
    Post

    A masterlist of ME facts & the citations that support them

    Thanks!
    Post by: JaimeS, Mar 1, 2019 in forum: MEpedia
  6. JaimeS
    Post

    Why are the majority of pwME rarely mentioned?

    I think we're agreeing here, but that means I'm changing my original (kind of devil's advocate) position. It sounds like severe presentation...
    Post by: JaimeS, Feb 28, 2019 in forum: General Advocacy Discussions
  7. JaimeS
    Post

    Golden hour (/month)

    Even here in CA, temps dropped pretty low at night. But I also think it is to do with the amount of light we do or don't get. At least, that was...
    Post by: JaimeS, Feb 28, 2019 in forum: General and other signs and symptoms
  8. JaimeS
    Post

    Why are the majority of pwME rarely mentioned?

    We often cite that one, but others might consider it conservative. There is that "13.2% work" from... someplace. I remember there was a bit of...
    Post by: JaimeS, Feb 27, 2019 in forum: General Advocacy Discussions
  9. JaimeS
    Post

    Golden hour (/month)

    Where are you in the world, if you don't mind my asking?
    Post by: JaimeS, Feb 27, 2019 in forum: General and other signs and symptoms
  10. JaimeS
    Post

    MEPedia is offline

    Thanks! It's been weird lately, I'll report that this happened.
    Post by: JaimeS, Feb 27, 2019 in forum: MEpedia
  11. JaimeS
    Post

    Golden hour (/month)

    I don't have remission, but I feel much better briefly in the fall, and worse in the winter. Do you feel worse in the winter?
    Post by: JaimeS, Feb 26, 2019 in forum: General and other signs and symptoms
  12. JaimeS
    Post

    Golden hour (/month)

    The wholllle thread. ;) Seriously, I started wondering why I felt so terrible in the winter, found out that we get negligible amounts of UVB...
    Post by: JaimeS, Feb 26, 2019 in forum: General and other signs and symptoms
  13. JaimeS
    Post

    Announcing #MillionsMissing 2019! Join us!

    Yessssss May I say that everyone gotta step up their game to meet Scotland. Last year was out of this world over there!
    Post by: JaimeS, Feb 26, 2019 in forum: Advocacy Projects and Campaigns
  14. JaimeS
    Post

    Golden hour (/month)

    A good chance they saved my mother's life. She was getting a shot a day there for awhile. I remember being 11 and being pretty sure she would...
    Post by: JaimeS, Feb 25, 2019 in forum: General and other signs and symptoms
  15. JaimeS
    Post

    Golden hour (/month)

    Not in the US, no. They ship to Canada.
    Post by: JaimeS, Feb 25, 2019 in forum: General and other signs and symptoms
  16. JaimeS
    Post

    Solve ME/CFS Initiative: ME/CFS Advocacy Week and DC Lobby Day 2019

    https://www.meaction.net/2019/02/25/get-involved-support-science-and-advocacy-this-april/
    Post by: JaimeS, Feb 25, 2019 in forum: Advocacy Projects and Campaigns
  17. JaimeS
    Post

    Solve ME/CFS Initiative: ME/CFS Advocacy Week and DC Lobby Day 2019

    So much going on that it's getting confusing from the inside of an org. I can only imagine what it's like if you haven't been working on it...
    Post by: JaimeS, Feb 25, 2019 in forum: Advocacy Projects and Campaigns
  18. JaimeS
    Post

    Golden hour (/month)

    All because I didn't have the time / energy to try and figure out how to make different results on different scales layer over each other in Excel...
    Post by: JaimeS, Feb 25, 2019 in forum: General and other signs and symptoms
  19. JaimeS
    Post

    Golden hour (/month)

    I remember I was taught -- De Meirleir recommended them. Couldn't get them at the right dose or formulation in the US so it turned out to be a...
    Post by: JaimeS, Feb 25, 2019 in forum: General and other signs and symptoms
  20. JaimeS
    Post

    Who said: don't bother testing patients?

    Ding-ding-ding! We haaave a winnah. Lucibee, you've tied this fifteen-page thread up with a bow. Perfectly said.
    Post by: JaimeS, Feb 25, 2019 in forum: General ME/CFS news
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