Or the devil in the details. Everything is a concept. Everything. It is baked into whatever idea you are trying to convey or discuss. Bringing...
A few years back I tried to distinguish between my POTS and my OI, but I just go with the flow these days. I was tested for POTS day and night -...
I am always better in the morning and I worsen as the day drags on. It's not due to sleep because my sleep always sucks. I've assumed, in part at...
The brainstem has been implicated many times in OI and ME/CFS and fibro and Gulfwar syndromes. I've had it suggested to me, for me, in two of...
Add to that the chronically ill who can still work, and a potentially large voting block could emerge. Many millions of sick people under a single...
For many clinicians Lyme Disease as a diagnosis is undermined - even undone - by the Lyme Disease concept. The latter is much broader and...
Seems like a "diagnosis" to me. "Diagnosis" would be safer than a concept. Everything is a concept, and concepts carry unintended ambiguities...
Thank you very much. I hate to ask questions when everyone else gets it. I think this may be wrong on a couple of levels. I think you may be...
Thank you, and sure, but how does that relate to ME/CFS, and how do perception and artificial stories in our brain cells and faulty neural...
I'm sorry, I find this "perception of voluntary action" reference combined with "our own bodies are narrated in artificial stories in our brain" -...
Oversimplifying what?
ME/CFS and LC are discussed along with Lyme, as well as PEM. https://www.lymedisease.org/complexities-long-haul/
That's fair, although I'd venture they're out there. The mind-over-disease thing doesn't seem to pervade Lymeworld like it does ME/CFS (at least...
Maybe she's been told she has both. They are both diseases that boil down to belief systems. They are beliefs in a disease, whether held by the...
Would't peripheral sensitisation make ME/CFS an interoceptive disorder? Does this align with Baraniuk's theories at all, or was it informed by...
I am thinking you're not suggesting this 'peripheral sensitisation' is a thing in and of itself - it doesn't just happen, we don't grow into it....
Yes, the relative unresponsiveness of muscles is part of it, as is the exhaustion. But so many of us have that "poisoned" sensation. That gets its...
Pacing isn't therapeutic, it's preventative. Our systems don't shut down. They scream bloody murder! PEM isn't a reflex learnt to avoid being...
Like many others, I rarely am exposed because I cannot get out much. But I do get the rare fever on occasion. However, I'm not sure if it would...
I suspect that there are, at least in some pwME, multiple pathogens (viral, bacterial and/or parasites) simultaneously at play. It may be a crap...
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