Doubtful it was the right thing to do considering where we find ourselves today. Moreover, if I read his note correctly, he was trying to...
Are these patients misbehaving in some manner, and if so, who makes that call? Prejudiced? Against institutions that not just abandoned us, but...
OR they assume the patient is not self-aware enough to tell the difference, or the patient is catastrophizing because they read an article in...
I too use "crash" to convey PEM to anyone not knowledgeable of ME/CFS, ie, pretty much everyone i know who I'd be willing to discuss ME/CFS. But...
Exertion-induced sequelae? EIS? I am particularly fond of EIS because it's a full-circle acronym in the US. In the US, EIS stands for Epidemic...
Ha! Tops 20 minutes, @Mij . But I've had my same doctors for years. No one even bothers to ask me about my symptoms anymore. Usually we fill that...
Oh I'd consider thousands of alternatives, but off the top of my head, I always liked the straightforward accuracy of post-exertional symptom...
This is a good description. It really does capture what some of us experience, with obviously specifics varying. I like the description. My only...
Isn't this to some extent an internet information source - one that some people also use to discuss information they discover? I'd wager there...
A) I'd ask that you read what I wrote; B) I would hope we patients would be able to both give credit and criticize? :) I've at times been...
Hmmm. Really? How long has it been since you watched Gone With The Wind? Medical definition of malaise: "Malaise is a general feeling of...
Yes, and similarly I never use the word "swoon" when describing my symptoms. :) And yes, I suspect we've all caught ourselves word-smithing...
For 15 years I have been coming across malaise in its technical setting every single day far more times than most doctors will in a month of...
Copied post Malaise??? How about arthralgia and myalgia? Does anyone think malaise is better that these two medical terms at describing joint and...
Malaise??? How about arthralgia and myalgia? Does anyone think malaise is better that these two medical terms at describing joint and muscle...
Good post. And it is beyond me. For the narrative, the definition, one phrase or even word at a time. But I fear so much more than editing factors...
Some believe what they've been taught. I imagine them as mostly emotionally uninvested and intellectually indolent. Some know better. There's a...
Too many people telling the world what it needs to interpret vague symptoms as. Too many doctors exposed to sham definitions and characteristics....
In part, but this appears more about the protracted trajectory an accurate description of a disease often must take before it is adequate. Maybe...
Oh dear, does no one recall the initial control groups?? What a total mind-fuck. It seemed to many the NIH never had a serious approach to...
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