I do not understand. I think my brain is shutting down for the day. I may have Hashimotos. I am hypothyroidal and on levo. But every now and then...
10 to 30%....It's kinda weird how that 20% persistence to the point of disability keeps surfacing. It could suggest an immune issue common to...
I'm not a fan of the dutch study. For example, look how they estimate cognitive difficulties. How do you really accurately do this without...
Look at the first sentence of the Dutch study: "Concerns about long-lasting symptoms attributed to Lyme Borreliosis (LB) are widespread in the...
Yes. I couldn't agree more. But medically speaking I fear such stories would fall under anecdote or, if lucky, a case study. I used to work for a...
How do you qualify what patients experience, in a statistically compelling fashion, if not through a questionnaire? Just because so many have...
Bets on whether the "fatigue" and "cognitive" efforts will prove successful?
Or on roughly 20% of Lyme patients, for that matter. And some other issues that are not so ME/CFS like, e.g. lung issues. Oddly, many with...
The patient voice frequently is best heard from a questionnaire, but it can and is distorted all the time. Questionnaires have for many of us...
I have been diagnosed with both. Over the past two decades I have been a member of many ME/CFS and Lyme forums. Although what you opine,...
If I had to guess, I'd say it's similar to the reason many with ME/CFS disparage and don't want to be associated with the chronic Lyme community....
Does anybody know if the C6 is still the main Lyme test (EIA or ELISA) in the UK? Edit to add: I am only finding NHS/NICE guidance through 2018.
I believe there have been studies suggestive of just that, back several years. Maybe Natelson or Peterson? It would be an interesting poll. I am...
Very cool. Thank you, @Jonathan Edwards. If I can follow up very briefly because I don't want to bore readers with my ignorance: Cases of proven...
For me, this is where a medical degree would be helpful. Isn't autoimmunity still a theory? The theory is some of our own antibodies or other...
Semantical. A rose by any other name. ME/CFS a specific syndrome? Sure, but one whose potential roots are too many to list, so much so that...
Might be helpful to compare what the CDC has to say about LC vs ME/CFS, but at first glance, I'm not so sure.......
So is ME/CFS. As is chronic Lyme. Who really thinks that except people who hail back to Ramsey? You need to let the symptoms define the disease,...
Let's see what happens when the blush is off the rose. What will the sentiment be five years from now? Three? Time is not on patients' side with...
That is a very optimistic observation in an age where research shenanigans at the expense of patients happens time after time after time in...
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