EBM is similar to peer-reviewed, at least in terms of broad expectations for excellence. I have a daughter who is a renowned academic. She is...
Case in point: https://www.mdpi.com/2079-6382/8/4/183/htm There are many of these in Lyme world. They speak to several different things that are...
Works sometimes with autopsies, I think. They're not usually done on large scale, but one-offs can be compelling. Case studies are why I still eat...
Good question, although, if I recall correctly, POTS is speculated to be a problem with the brain. Regardless, perhaps cardio problems may emerge...
They actually say that one of their goals is to be able to objectively measure the efficacy of a given treatment in a clinical trail, I guess as a...
Yes, hence my question as to whether they are actually gauging the impact of POTS, ie, it's a 10 minute lean test. Only if they can distinguish...
Are they conflating POTS with PEM? Do they even mention PEM? POTS is just a symptom/manifestation in some ME/CFS patients; not all pwME suffer...
Ok. The cynical me wonders, though. Most research endeavors fatigue-related seem to have dubious effects on our community, at least historically....
Another fatigue study? How will they differentiate between any other chronic condition that involves fatigue? Are couch potatoes included?
Moderator note: This post has been copied and following posts moved from this thread: Concerns about craniocervical instability surgery in...
Not really clear on how credible this statement is, at least in terms of POTS. I thought there were tachacardia and or/BP change requirements to...
I think it was Dr. Bell that reported a similar thing about some of his ME/CFS patients. He observed some patients actually thought they were...
Please cite one that wasn't short term.
Well, it shouldn't. But the reality is that it happens more frequently than I am comfortable with.
How can anyone tell that God didn't decree it? Or that the repressed emotions that caused these people to be sick were released, and they grew...
This is an inference that may not be accurate.
Doubtful.
It's long over due for someone to methodically biopsy tissue from the entire body. If that is what he is proposing, I just hope he's looking for...
Also variations of the Babesia parasite. They can test only for a couple. Of course, as far as I am aware, there is not an established...
Alan Steere will be the guy. But he got a lot wrong. In fact, he was fairly certain he was dealing with a virus since abx therapy left so many of...
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