I don't believe I said I had any problem with exertion.
It's how the likes of the NIH employ words like "effort" that concern me, not how we interpret them.
I suspect this holds true for most diseases, from a cold or flu to Alzheimers and cancer, but you seldom see volition or effort summoned. Yes,...
Fair, although I think the way we deal with the pysch exploitation is to simply reply "insinuations involving effort and volition in any disease...
Why do I get the impression we are not talking about the same thing? Regardless, I think the central truth of the problem is medical politics...
It's one thing to debate capability when it comes to most diseases. But I fear the lines blur when we venture into volition and effort. This may...
Except for the effort part, which simply doesn't belong. People with channelopathies may have an involuntary block per se, but they still usually...
I fear research like this can send the wrong message. Take some deep breaths, calm yourselves - and you'll feel better? Even if it has a...
Jaime was so good. I could never have comported myself as well as she as sick as we are. She conveyed some complex concepts easily and engagingly.
Maybe not landmark, but once again a curious concept, this one of acquired channelopathy, in that in many ways it fits into several contested...
Yes. For me. at least, it could not be much worse. As with the NIH Eefrt bizarre weirdness, you have to ask, "Why"?
Yes. Agreed. But it's complicated by issues you don't necessarily see in ME/CFS (just as ME is beset by things you don't see in Lymeworld). One...
I'm all for getting more money in an area that is seriously underfunded, and I applaud such efforts, especially successful ones. That being said,...
Broadly speaking, yes, and - on paper at least - for longer. These (TBDs and ME/CFS) are in large part diseases whose narrative is politically...
Allocating more money in theory is a positive. Respectfully, throwing that increase at more or less the same groups who have failed patients for...
Meh. $25 million for "Lyme", defined and characterized by whom, spearheaded by whom? Spent by whom? As for $125 for tick-borne diseases,...
To me, this simply seems poorly worded and vague. First, pwME can suffer from OI even when not in PEM. Perhaps if they had observed that PEM...
Spite?
You have to know where to look, and what you're looking for.
Back in the early 1950's the Nobel Prize went to a couple of guys who demonstrated that a fetus can inherit from its mother an immunological...
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