Quite well explained, I thought.
What's interesting about this table is how relatively low symptoms are in FM compared to ME, GWI and ME with FM. Even pain looks lower.
I've not received any notification yet. Either they're being thorough with it, or I'm not meeting their criteria. But I have ordered and...
Except in this case the Bansal score chart specifically measures whether it was delayed and prolonged: So it's not perfect, but it's certainly...
Annoyingly, it doesn't say which of these criteria they used, if any. Though Bansal has his score chart, so perhaps he used that. It does require PEM.
Yes. We have two more meetings to finalise the draft for consultation, then there's the 6-week consultation itself, followed by one or two...
No, that's an assumption you've made. I haven't said that and couldn't say either way. It's probably not helpful to say things like this based on...
I get this. I'm afraid there may not be an easy solution, though. Perhaps the best we can hope for right now is that what is endured this time...
I thought she was really well informed. It sounds like she either has or had ME, or has a close family member or friend with it.
I just got next day delivery with Iceland. I had to confirm I was extremely vulnerable (I believe I am, at least according to that Asthma UK...
Probably not. The problem isn't highlighting papers that are already there--NICE (or Cochrane) see those papers and know they're there. It's just...
Huh. How strange. Was it really her house or was it like The Big Breakfast house?
There are a number of issues which I'd be happy to discuss in more detail once I'm out of NDA. I have a lot of opinions about everything,...
Okay, I'll put it even more simply: how can NICE decide there's no evidence without looking at the evidence first? Therein lies the rub. To make...
You covered much of the ground I was going to. But it goes further than this, too. PwME are not the only stakeholders here, as you rightly point...
I think there's been a mix-up. I can't see from this release that she's going to be filmed at her home. Rather, it looks like it'll be broadcast...
From what I understand, too much of NICE's own team, not just the members of its committees, is comprised of current or former NHS staff....
This sounds sensible. Besides, if she gets it, that's punishment enough.
That's the Wikipedia definition: https://en.m.wikipedia.org/wiki/Post-exertional_malaise
This was where I found the Asthma UK guidance: https://www.asthma.org.uk/advice/triggers/coronavirus-covid-19/ This may help others who are on a...
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