Just a heads-up that posts from this thread have been quoted on Facebook out of context (with authors' names). The quotes I saw weren't really a...
The only downside of that is that illnesses named after individuals are out of fashion. I wouldn't mind it, though. For me, ME is probably the...
I think that's sort of besides the point. As I said, this is a hypothetical discussion, so official WHO coding is irrelevant. This isn't about an...
I think international medical terminology and what we use in everyday language are different, and that's fine. As you point out, changing the WHO...
My preference would be to refine the acronym ME, if needed, in the same way fibrositis became FM. I've sometimes wondered if myasthenic...
Of course! I think that's fine.
@Lidia Thompson, I'm a lay member on the committee. After December, I'll no longer be under NDA and could discuss the process with your friend,...
Don't forget, too, that we have a pediatric and severe patients section, with data from the focus groups done by Keith Geraghty and Oxford...
It's fine. It's not a rant at all. Although I should warn everyone that my reply is long too. Loose criteria in trials have always been a problem...
I agree with that too. I think you can know the history and prefer the term ME without everyone falling out all the time (I'm not including you in...
Thank you. So the problem with NOS, as I can see, is that gradual onset patients or those without viral triggers would all get shunted here. It's...
I had almost tagged you in the post to provide clarity, but assumed you would. I think my point still stands. What exactly is CFS NOS? Fukuda?...
And I would argue with that characterisation too, since it's not a requirement to be older to insist on others using the ME terminology. There...
Firstly, this is a long post, so I apologise in advance. There are a few things to consider here. I prefer the term 'ME' but for the many reasons...
Great. It's pages 25-26 of this report.
It's here: https://me-pedia.org/wiki/Bansal_Score_Chart_for_ME/CFS
That's why a scoring system can be helpful. I keep harping on about the Bansal score chart, but I think it's useful for this reason. You can...
That last suggestion would be interesting. If every patient were asked whether they received a placebo or active treatment, the results could be...
The brain stem again... I'm convinced it's involved in ME too. Slowly, slowly, we're getting there.
Sci-hub is not a publisher. It's a piracy site for academic and scientific papers.
Separate names with a comma.
