Our line of defence is simple: "NAM, NICE and the CDC disagree with you. There is evidence of harms spanning two decades and 15,000 people across...
I'm not convinced by these words. "Tired but wired" is just a small part of unrefreshing sleep and the "woozy"/"swimmy" bits sound too vague for...
So PEM was optional?
Trish is right that it requires common sense. Most criteria are supposed to have a little bit of leeway involved for clinical judgement, but this...
This is the risk with any research, sadly. There will always be some patients who are wrongly included in some trials, and some who get wrongly...
So I believe this paper has been accepted for publication now, and there should be more info forthcoming. We made changes based on the feedback...
I think it's also possible that different races and ethnic groups are reported as having different symptoms for different reasons, and that might...
The longer the list of exclusions is, the more chance people with comorbidities will be left out, that's true. But this is for research...
Thanks everyone for your excellent comments and input into the process! It looks like IQWiG faces some robust responses. Also, they're showing...
I'm paying attention. Please tag me if you spot any others.
Unfortunately, "useless" isn't one of the options for rating evidence. If it shows any meagre sign of benefit, it's considered useful by the...
I read it as saying that you shouldn't have the choice between brain fog OR OI as a symptom, as OI doesn't add much that brain fog doesn't cover....
Agreed. It is pleasant. It can help you feel a little more in control. It can make you feel more relaxed, certainly. But it's not a medical...
Oh yes, I am aware of this. It's woefully outdated. But thanks for reminding me.
The bit that says "18 ME/CFS patients who met International Consent Criteria (ICC) (ME/CFSICC) only" suggests they didn't also fulfil Fukuda,...
Brilliant. That's helpful. So this seems to be a general policy that they applied, rather than something they specifically devised for this...
Do you have a link I can check? It seems to me they would've known what our guideline said, and how we did it, since they used our evidence review...
Honestly, I think that if people are lazy, adding more detail won't actually help. :laugh: I'll see if we can use your wording, though, because...
The EMEC response is strong. @Pustekuchen's notes on PEM are great and worth submitting (perhaps with @petrichor's tweak for tone). I hope our...
All I can say is: people are aware and watching. I can't say more right now.
Separate names with a comma.
