No problem. I think we all hope that when we finally get to see the right specialist, we'll suddenly be taken seriously and get wonderful care....
Being generous, he might just want to avoid you taking opiates long-term. Being realistic, I think he was saying it's not a medical condition. I...
I was somewhere between brown and violet noise, I think. It's hard to say. There's something higher but very soft behind it, that only becomes...
Whenever I read descriptions of lassitude, I think it's similar to some of the fatigue we get. Though Jason suggested we get five fatigue 'types'...
Great news!
Apparently, inadequate REM sleep can cause 'waking paralysis' akin to sleep paralysis. That might be a good place to start. The Australians seem...
Paresis is usually the partial or less severe type; paralysis is where it's more complete or more severe.
Agreed. We may never know.
I think weakness and periodic paralysis are different, though. Mithriel described not being able to tell somebody what's happening because she was...
I think this is a fair point, but my impression is that while it certainly happens in this patient population, it isn't generally considered a...
Another thought occurs: are patients who are more severe more likely to seek out the test for ways to alleviate the severity? Maybe all the...
Curiouser and curiouser. I admit it's weird. I don't know the answer here. It would be interesting to poll everyone who's done it and find out...
It's definitely the best we've got. I wonder if we patients could tweak it ourselves and then ask researchers to test what emerges?
Another thing occurred to me: are those who fork out the £430 for the test plus interpretation more likely to be working (i.e., perhaps more...
Does the testing protocol ask you to self-rate your disability level at any point? There are two things that spring to mind (though there may be...
It covers many symptoms, though I feel it doesn't quite capture PEM for me. It needs to be able to capture things like delayed effects, prolonged...
It might be that they've deleted the page without deleting the attachment that was found at that page?
Don't poke. That's how hands get bitten. ;)
It's not even NICE 2007. That guideline says: PEM is also listed as a mandatory part of their fatigue definition: That reads like more than just...
It strikes me that the performers and the programmers both failed to consider their audience. I would not want to watch this over dinner at the...
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