This is exactly what I tried to provide and I spent several days working on it in 10 minute chunks, putting aside other work I could have done...
goal setting and treatment planning, and monitor changes The term goal setting is toxic given the history of GET. Just don't go there. Treatment...
PEM triggers - physical, cognitive, social, emotional, and mixed activity The terminology is very subjective. One person's moderate is another...
PEM vs other forms of exertion intolerance There's a lot of discussion on this in numerous threads and Trish's analysis is excellent. I urge you...
PEM - symptoms vs function I haven't given this much thought but I think it would be very worthwhile investigating if the FUNCAP could be adapted...
Severity levels I like that there are 5 levels rather than the usual 3 or 4. I also like they're simply called Level 1/2/3/4/5 rather than mild...
Baseline activity You said baseline activity was the preferred term. That may be so but it is highly likely it is 'preferred' simply because of...
Hi @sarahtyson. Thanks for engaging here in what may feel like quite a robust discussion. I'm not in the UK so haven't completed the...
So far read only the abstract and some of the media coverage. Meh. I wonder what the 17 pwME are feeling right now. Mixed emotions I guess....
[just commenting on the abstract, haven't been able to catch up on the whole thread yet] Is this yet another one of that seemingly endless stream...
ANZMES announcement about World ME Day 2024 https://anzmes.org.nz/anzmes-a-globalvoiceforme-on-world-me-day-2024/
Theme for World ME Day 2024: Become a #GlobalVoiceForME - Together, we are battling a global health crisis. https://worldmealliance.org/worldmeday/
More complications: The underlying driver of PEM may in itself be asymptomatic - cue the delay in PEM - until it crosses some threshold of...
Complications abound We still don't know what PEM is at the mechanistic level. It follows that we don't know how to measure something we don't...
That is one tough nut of a question @Andy. The more I think about it the more I'm struggling to disentangle everything in my mind, there are so...
Copying my post from the NIH news thread as it's more relevant here
Ah, that link worked. Thanks @wigglethemouse So the Project End Date is 01-May-2024 Which means the data presented in the video is probably...
Background: Good Sorts is a brief segment that runs once a week at the end of our most widely watched TV news programme and always features a...
None of the links above are working for me but this presentation by Dawai Li looks to be related: “Endogenous Retroviruses and ME/CFS” (starts at...
Has anyone watched Jiandi Wan's section (starts 2:28)? I watched a bit mainly because the name was unfamiliar which made me curious. Turns out he...
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