/...continued/ We have a general idea already, there's much more seeking (and needing) than getting going on. Selection bias would likely skew...
/...continued/ Not by itself a question to build a registry on but could be interesting in conjunction with the stratifying question above and it...
/...continued/ This could be a useful question. Not so much for the mod/severe issue, we already stratify by severity, and the bit we don't know...
Some thoughts about the example questions in the previous post's quote, and their relevance to ME (I'll break it into several posts) Would be...
Has anyone found out more about the potential NZ patient registry? Like, what's actually being proposed and what stage it's at? Taking another...
Nick has received a grant to look into the prevalence of autism in NZ. Interesting because autism very likely also has significant diagnostic...
Have not been able to follow this much, so just some disconnected thoughts on the topic I donate but don't fundraise for much the same reasons...
Have only skimmed bits of the paper. A couple of questions: There were significant age differences between the 3 groups and this wasn't mentioned...
Interesting that most of the posts here centre on a lack of energy (however you want to define energy) when one of the most frequently heard...
It is seriously annoying the term functional has been hijacked by the double-speak crowd. Every time you see it you have to double-check which...
in mice Danish article about this study with brief mention of CFS (which doesn't appear to figure in the study itself, assuming my word search...
Thanks @Sasha for getting the ball rolling on this and also for your summaries, very helpful to those of us unable to keep up. The summaries are...
I posted this in another thread but it seems relevant here
In the current environment I fear any declaration or similar coming from us or from our usual advocates would make little impact. Most likely it...
A bigger problem is that many of these are already 'taken'. I just ran a few options with just ME through the search engine - analyseme,...
I don't think having only ME in the name is a problem as long as ME/CFS is used in the tagline and consistently throughout the blog (as is the case)
I started off torn between change and status quo for all the reasons for and against already outlined by previous posters. So I did a small,...
Thanks for the update @Andy I have a dim memory of Chris saying somewhere, can't recall where not so long ago, that there were disappointingly...
1) What are examples of anti-exhaustion drugs? 2) What protective qualities are they referring to?
The reason may be as mundane as availability bias. When researchers do their literature reviews they see symptom questionnaires - however...
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