[Just found this sitting long forgotten in my 'thought experiments needing more thought' draft file. Brain not volunteering many sharp thoughts...
Long Covid webinar. Hosted by the Helen Clark foundation (former NZ prime minister). Good speakers Doesn't say if it will be available for later...
They're getting a lot of feedback, there were 200+ comments on their FB post already when I added my 2c worth yesterday. Didn't manage to read...
Good to see they're looking broadly at non-restorative sleep and sleep disturbance, not just that mysterious 'unrefreshing sleep', too often...
ANZMES comments on NICE and releases Best Practice Guidance, see https://www.s4me.info/threads/new-zealand-anzmes.15144/page-3#post-521286...
From last year but don't think this has been posted?...
ANZMES commenting on the NICE guidelines https://anzmes.org.nz/the-nice-revisions/
Opportunism usually has a bad name but this is a type I like. Way to go! :):thumbsup:
no paywall here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10502894/ Younger briefly discusses the study here: [MEDIA]
some random top of my head thoughts on charter idea (post & run, still unable to participate properly in debate) ethics review boards already...
Thanks for making this podcast @MittEremltage for those of us with low reading stamina (and who understand Swedish) What a story! Has the...
If you're quick you may be able to get Vicky to post on your behalf. I emailed her and she did for me mecfsresearchroadmap@ninds.nih.gov
@Kitty, very valid concerns. In fact, that exactly the sort of feedback they need to hear! You can choose to give specific feedback on one or...
Last week to make submissions (the email route works by the way, if you can't face the rigmarole of the website)...
From the above
Just wanted to highlight this https://www.meaction.net/2024/02/29/meaction-nih-study-response/
https://www.researchgate.net/figure/The-17-vital-exhaustion-symptoms-from-the-Maastricht-Questionnaire_tbl1_329804988...
Has anyone submitted something to be posted on the website by email? Did you get a confirmation email back? And how long did it take for your post...
Have only skimmed this but it actually looks pretty good to me. Yes, it's theory-driven but the theory is that patients are in charge and the...
I've now read the main parts of the study. It comes across like a messy political compromise, as in everybody had to do trade-off deals to get...
Separate names with a comma.
