Steffany Colvinns shares how her diagnosis with POTS has impacted her life and how UCalgary research has benefitted her. Patient a proponent of...
@Yann04 Are you able to provide something in writing, like downloading and printing out a pamphlet that explains in detail your medical...
@Yann04 I'm sorry you have to deal with this BPS nonsense from your caregiver. This feels like emotional abuse on some level. I would full...
What is your current severity? moderate What triggers PEM? going over my energy threshold Can you usually identify the trigger? yes What kind...
All very good suggestions. I promise not to post about PG anymore.
What triggers mastocytosis? There are dozens of potential mastocytosis triggers and not everyone with mastocytosis reacts the same way. Some...
A friend who had ME/CFS for over 37 years had what he called mastocytosis. I think Dr.Paul Cheney investigated it since he was his patient.
The ME doctor I saw in the 90s didn't give an ME/CFS diagnosis to my friend who was later diagnosed with FM only. She does not experience PEM...
Abstract Post-Acute Sequelae of COVID (PASC), commonly known as Long COVID, presents with a broad spectrum of medical conditions and symptoms...
Chronic widespread pain in muscles and soft tissue is the main criteria for FM that r/o other disorders that could explain pain.
Chemoreflex sensitivity in POTS patients is not altered by neck compression in the supine position. While neck compression reduced resting...
PrecisionLife and Metrodora Foundation announce confirmation of key genetic findings for long COVID across diverse populations Results reproduce...
@Utsikt Possibly because a subgroup of pwME don't experience pain?
It's painful when I move my shoulder, arm, or turn my head a certain way, so not continuous pain. I almost fainted a few times went it hit....
Merged thread Abstract Research of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FM), two acquired chronic...
Going on week 5 with shingles excruciating pain in my lower shoulder. It takes on a whole life of it's own, some days I'm almost pain-free...
For decades, scientists believed that infections were determined solely by viruses and bacteria. But Professor Jean-Laurent Casanova’s...
I got a call from RFK Jr telling me I got ME from vaccines.
I think more people are being diagnosed with ME/CFS in the last 20 years. The Canadian ME doctor I saw in the early 90s told me that he has...
My understanding is that a saliva cortisol test only measures cortisol a that specific time? Both my 24hr urine cortisol test and blood tests...
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