Yes. It's downright offensive. We all try to be as 'optimistic' as possible, it's only natural to hope for the best, but within the realms of...
This times a million. So sick of seeing a life-destroying disease reduced down to 'tired', 'tiredness', 'fatigue', 'chronic fatigue'. That has GOT...
That would be an excellent idea, if someone knows how to contact the family to put that suggestion to them. It's insulting to her memory and to...
Possibly coached by the SMC, to make it fit their bias?
Re: I don't know if anyone has mentioned thinking the same thing I did when I saw that, maybe I've missed it, but what struck me was that of...
Yikes, this thread having come up again, I see that all the ME-pedia links to Ramsay's 1986 definition mentioned in my previous post, are now all...
Yes, that's why I looked at the thread too! This makes it seem as if they are trying to look like they are associated with the actual Mensa. I...
How is it that they are able to use the acronym MENSA? Are they associated with the famous 'high IQ' organisation Mensa? If not, isn't it illegal...
I found that the more severe I got, the less sleep I was able to achieve. At my most severe, it was taking approx 3 hours to get to sleep and then...
This is so fantastic! Recently ME advocate Joan McParland was awarded an MBE for services to people with ME and their carers, and now our @JaimeS...
THIS. :emoji_dart: Wish I could like this post a million times. It has always struck me that how the heck can millions of people all over the...
This 100%. Everything they write is littered with 'it is assumed', 'it is thought', 'may be', and other vague belief-powered, not scientific...
Very good point. When ME was renamed CFS and reinvented/redefined as mere 'fatigue', contrary to the WHO classification and the original Ramsey...
LOL. As a former programmer myself many, MANY moons back, this is a good analogy. No need to possess the pesky logic to write a program that works...
And there was also Wessely's comment that 'we're in the business of rehabilitation' in a BMJ podcast back in 2010: He says it just after 11:15 of...
This :emoji_dart: It's just basic common sense that if someone is starving to death because they can't swallow/keep food down, you give them...
Good links - it could be a good idea for the families of these patients to get the Care Quality Commission to look into these cases.
This is how I've understood NICE Guidelines to operate too, that they're not compulsory as such, not rules written in stone, but guidance that one...
I saw that on Twitter, it's excellent. Worth reading the whole thread for a detailed no-nonsense account of how assigning an FND label rather than...
I just came across this on Twitter, has anyone else here seen it? Yet another young woman with severe ME, Carla, is being abused in an NHS...
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