https://www.bacme.info/civicrm/event/info?id=15 BACME networking event: A Conversation About....NICE
I have just noticed the Queen Mary PACE trial page has been removed or moved. This page was full of info on PACE and had links to various...
https://me-pedia.org/wiki/List_of_deaths_caused_by_myalgic_encephalomyelitis_or_chronic_fatigue_syndrome
I remember coming across this Memorial list https://www.ncf-net.org/memorial.htm Obviously, I can't vouch for its accuracy, and the caveats...
Exactly this. Just an extention of what has been going on in our community for decades now.
It seems like the covid version of Myhill's mitochondrial test score: take lots of different measurements, then combine them into some sort of...
There's a thread on Patterson here:...
Just bumping this. The PSP is keen to get applications for the final workshops from carers and healthcare professionals (in addition to ME...
If anyone has a PDF of this paper, could you please send it to me! Thanks. EDIT: Obtained.
You could contact the ME Association to see if they have heard of any other alternative.
I'm not certain, but I suspect not. I think everything goes through GP clinics, except pop-up and walk-in centres.
I am thoroughly confused about the booster roll-out. I was put in Group 6 back at the start of the year and had my second dose in early May. I...
Chalder coming up with the idea for this paper: [ATTACH]
I'm tempted to think less incentive to hand out anti-depressants is a good thing, but if the alternative is six months on a waiting list for...
This was the survey Dr Phil Hammond shared on Twitter saying it was a pre-guideline survey showing that GET was not really widely used in clinics,...
The expected guideline publication date at the time of submission was 21 April 2021 (announced June 2020). Yes, it can take months and months—and...
Oh. I actually missed the 2020 in the first date! A paper does not usually sit with a journal for a year, but the fact that they give the original...
Yeah, this was more a 'response' to the draft guideline than the final—probably prepared over summer.
They're trying to stake a claim to rehabilitation, and set the patients as being anti-rehab (because the BPS lot think that patients think anyone...
This is a essentially a response to the NICE guideline, and the associated debate over key issues, that somehow manages not to mention the NICE...
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