In the US, most insurances will pay it, in Europe they won't (I don't know if private insurances would, though). And yes, these kind of surgeries...
Maybe there is missed knowledge, because Jen had a diagnosis of ME and then CCI was found, and a CCI surgery helped. Obviously something is...
When lying I have a BP around 90/50 - 100/60, pulse 40-60. When upright, though, BP rises to normal and pulse up to 140 (but I have...
I've just realized there was a thread discussing a paper about corticosteroid-binding-globulin deficiency:...
Not understanding that they wouldn't be doing individual advocacy. But I think they intuitively grasp how difficult it would be to take that path,...
Maybe that's a good idea!
Yes, mild ME is severe for most people.
I agree with the 9-5-part - the "good" people go early to bed and get early up; the good people are disciplined. Personally, I think that's part...
Ok, sorry!
This is not what people were saying in this thread.
My guess is that you will find a pattern in a study that looks at everyday-life. Every being has patterns. And nearly every human being creates...
You can get a (probably clear) pattern from observation alone. I agree that sometimes observation doesn't give enough information that is needed...
My takeaway from this thread and from my own experience is there should be no plan on a pwME, especially not on severe pwME, and so no trial with...
I'd suggest to not do any GET/CBT trial on ME patients.
Actually this decsribes in a much better and clearer way what I thought when reading this thread. I hope I understand the idea, and if I do, I...
I think the NIH study "Daily activity patterns and heart rate variability in ME/CFS" is doing something like that?
They only accept US participants. In the very friendly reply it was expressed that they hope to help people with "chronic fatigue".
Isn't that "cheating"? I.e. I expect a better result than with the grip off the leg (because you will build up pressure against the leg). In my...
:laugh: That's funny - and embarrassing for the author. But surely this needs to be viewed more differentially, like it's unhelpful to pretend...
This is my experience, too. I also have muscle weakness during and after activity, only afterwards it's worse (obviously), and during PEM, too....
Separate names with a comma.
