Dear @Suffolkres, do you have an original or reference of this text?
Even if Action for ME means well, the DWP and others will misuse the information they received to deny people benefits. And they will be correct...
What a wonderful summary @Daysailer, thank you!
Would it be worth contacting her re. the ME Wikipedia page?
I am highly sceptical about the presence of competence. My impression was any brain scan research is pretty complex, and I don't see why Crawley...
One big problem might be that these people never had that kind of pain.
Accusing someone repeatedly of "harassment" (or libel or whatever) in public can be harassment as defined by law. For this, it is not necessarily...
I cannot film these events because I'm mostly alone when they happen, and I cannot say when they happen. But I try to remember it, it's an idea....
Ahhh, that sounds terrible! :arghh: Ouch. Really, let you check. If I fall, even "lightly", I always get some surprises. Since I'm sick any...
Thanks @Milo and @Little Bluestem, MS was ruled out. It only happens when I've overdone it, and it goes away with rest. I don't think that's...
The following is from the German perspective: As far as I know it is legal to refuse benefits/payments if one refuses "accepted" (i.e....
Please keep us updated. Today again, right leg "weakness", with lots of concentration I could change from dragging it to limping for some...
So they're seeing @dave30th as a threat now that needs to be silenced. Good sign in fact. If there's any help we/I can offer for the fight...just...
That means, fibromyalgia: 30,7% were refused at the start, 4400 of 29580 = 14,9% appealed, 1370 of 4400 = 31,7% won and 68,3% lost, so in total...
@Michiel Tack, that's a great summary! I saved it also for later, maybe I can use it for my processes. So two times thank you :)
Indeed, there exist papers about the communication of immune cells (e.g. mast cells) and neurons in the gut (e.g. of the vagus nerve); there's...
In theory, the right to express an opinion is limited by the rights of others, like physical integrity, and by crime laws. This is a very fine...
I take Ranitidine for MCAS. Although it helps with the symptoms related to this, I don't feel it helps with ME symptoms. But still, that it helps...
In a paper about inherited peripheral neuropathies, burning muscles (and fast muscle fatiguability) went under muscle weakness.
As you know I'm interested in that topic. :) And I have one-sided "weakness", too, in the right leg. When I've done too much, I limp; a bit like...
Separate names with a comma.
