On another thread, @MelbME and I were discussing whether existing studies of Covid infection or severe physical trauma would allow researchers to...
I can't remember much attention being paid on the forum to ME/CFS arising from physical trauma...
This is interesting because it might not just be an area with parallels - it might be one of the right areas to look. Although most (about 2/3?)...
Worth starting a thread on, to attract the people on the forum who might be aware of/interested in that specific thing?
Wow, that's amazing. Maybe he'd fancy moving to Melbourne.
I wonder whether, unfortunately for the patients in question, Covid offers that opportunity, and whether the data might even already exist,...
I get myoclonic jerks (my shoulders jerk forward) when I lie down and relax sometimes, particularly when my ME/CFS is bad. I once did a two-hour...
I hope I'm not repeating an issue that has been brought up before, but I was surprised to see the following as the only descriptions of OI in some...
What is it, though? Do viruses such as EBV fire up a bit of the immune system that can take ages to shut down, but eventually do so?
Thanks, Hutan, but what I'm suggesting isn't any sort of association between S4ME and AfME. I'm suggesting that if a bunch of forum members wanted...
Thanks, @Ash. I quoted the relevant bits of Sonya's letters to Trish upthread, here, and I don't see anything that would rule out what I'm...
Can you point me to where they have said that they don't want a group contribution coming from people on S4ME? I'd be a bit surprised if they had...
Sonya didn't specify how their review process works, but an obvious way would be for a staff member to write the first draft of each document and...
I thought it might usefully feed in but I'll hang fire and will PM you (a bit later).
Just coming belatedly to this thread. Stellar letter, @Trish! I've pulled out quotes relating to how S4ME might contribute to better AfME...
Just managed to find its very jaunty YouTube promo video (very lively music, sound off if you're sensitive!). The weblink to the blog is dead, but...
I think you have your priorities right, @Kitty! Extremely ill PwME who are living under such extreme circumstances with very little money...
What sort of work does AfME do in this context?
Is he on the forum? Can we just ask him?
That's an interesting thought, but I posted the quote not because of that aspect (which I hadn't thought about as deeply as you but had assumed...
Separate names with a comma.
