It's still not me! I don't have a project-wide team! :) It's the committee that has set up the framework and will initiate and organise future...
I wish I could claim them as such but they're really the forum's factsheets. I'm just the person banging on about them all the time. But the more...
It doesn't exist yet, but @Kitty suggested it and the idea went down well on the thread.
This is one of the things we should be putting in the suggested factsheet for patients who are considering being in a trial.
Thank you for your service. :( Noooooooooo! :arghh:
Yes, such as, 'Don't use subjective measures as primary outcomes in open-label trials'. That could have saved us a whole lot of trouble. :whistle:...
That's a good thought. 'Clinical trial breaches national research standards' is a much bigger news story that something about Cochrane, who only...
That's amazing, @Caroline Struthers! I hope you get your funding. If you don't, and you haven't already, maybe you could apply to one of the ME...
Yes, I think that's an excellent idea.
Thanks for that summary, @Jonathan Edwards. What a terrible waste of a great concept. Cochrane could have been such a force for good.
But Cochrane has a long history of doing reviews in non-behavioural areas - all sorts of drugs and surgery for all sorts of conditions, and I'd...
Thanks - apparently that was the third time I downloaded it! I saw no sign of a document on the page itself. Maybe that was my adblocker in...
I just followed @Nightsong's link to the 'This is M.E.' page but found it completely blank:...
Are there any research standards guidelines in ethics committees?
I'll confess that you've lost me there! I sometimes think it's a pity that doctors don't live their lives backwards so that they can first...
People, yes, but professionals? Where are all the professionals?
But this is on our plates. It has filled most of each plate! And I don't see others lifting, unless there's some way of enforcing the Helsinki...
It sure is but I'm not grasping what factors are at play here. There seems to have been a field-wide dereliction of research standards in medicine...
Do we know what sort of teeth that declaration has? If PACE was proposed now, how could the new Helsinki declaration but used to stop it?
Very good points. Is there no international patients' research charter?
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