Thank you, @Jonathan Edwards, that's excellent. I don't know if you want comments, but I was a bit confused about the title, because I didn't...
@Jonathan Edwards - Is there any kind of standardisation across different diseases in terms of what gets classed as 'mild', 'moderate' and...
PACE had an objective measure of physical fitness (which involved patients doing a step-test while having their oxygen measured, IIRC) and there...
I see potential for S4ME to simply start a thread announcing an appeal, sensitively phrased to avoid making PwME feel bad if they're not in a...
I don't think we could do that - we couldn't prove that we wouldn't run off with the money! It would need to be set up by Edinburgh, I think.
Edinburgh needs to fire the starting pistol, though. I see people have just posted the link the to the Edinburgh donation page but on another...
As Tuha points out, the wider ME/CFS community has helped get individual labs/projects funded but it requires leadership, which in the case of the...
Huge thanks to you, @Trish, for all the work you're putting into this. Please don't crash yourself!
I hope you will, because Cochrane are doing an outstanding job of not listening to patients.
Problems with hot baths might be due to an exacerbation of orthostatic intolerance.
I've completely lost track of this whole cell danger line of inquiry. How is it going?
I just misread the thread title as, 'How does exertion affect sheep?' o_O
Imagine having your activity micromanaged in this way by people who think you can exercise your way out of a disease.
Thanks Peter - I didn't know that about GiftAid. That's interesting - I had no idea of cost, and I worry that the MEA have fallen into the trap...
That's the impression I get but I haven't followed what happened...
If it was my billion, I would do that for sure. But if, say, the UK government suddenly decides it's going to cough up, as opposed to some...
From another thread: For one billion dollars RECOVER yielded 0 insights precisely because just randomly collecting data doesn't seem to be a...
If I could work via telepathy (!) then yes, the limiting factor would be mental fatigue and I wouldn't get PEM from my cognitive work.
I'm not sure I'm answering your question properly but I'm too physically impaired to work for long - even to sit up for long enough to use the...
I don't think I ever get PEM from cognitive exertion, but maybe I just haven't noticed. I don't think we have great data on this, but I wonder...
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