You might like a thread I started on BDV here: New Studies Show Borna Disease Virus Infection in Psychiatric Patients
I am not quite sure whether amantadine (which is a drug ME/CFS patients sometimes use) will work for BDV, as several studies found that this drug...
The 1997 Japanese study mentioned above for example found BDV in 12% of ME/CFS patients using PCR, so that is evidence that BDV can infect humans....
So you found by comparing your 23andme results to your whole genome sequencing result that there was only around a 2% error rate in 23andme; but...
I don't think the presence of BDV in humans is contested. Indeed, it was mentioned in the article that BDV was passed from transplanted organs...
Borna disease virus (BDV), the bornavirus species which infects humans, has also been studied in the context of ME/CFS. Some studies found an...
I think Ampligen is presumed to work by increasing the immune response against pathogens. Since Ampligen stimulates TLR3 and thereby induces the...
I agree, there will likely be some increase in walking in the more cerebrally-inclined patients, even if it's only a walk to the bookshop. But it...
I've often wondered how accurate a picture step monitors will provide of the activity level of a patient. If you are someone who prefers more...
In terms of trying to run better clinical trials for ME/CFS, I wonder if it would help to select a cohort whose level of ME/CFS severity has been...
Perhaps I am just an idealist, but I think we should feel responsible for doing these trials in the UK because of the nature of our medical...
The other issue in the UK is clinical freedom, which seems more limited here compared to the US. In Dr Martin Lerner's blinded, randomized...
This thread was spilt from : https://www.s4me.info/threads/cbt-jen-brea-twitter.3013/ We re not aiming to make GPs think ME is a biological...
Isn't one of the reasons GPs have readily adopted the (erroneous) psychogenic view of ME/CFS, and its associated ineffectual treatment with...
It is a bit leftfield, so I think it's hard to make any judgements about its chances of success. But we can certainly keep our fingers crossed....
I think you will find that ME/CFS patients do have low cortisol, if you review the studies: Studies finding lower cortisol in ME/CFS throughout...
Don't forget that Simon Wessely was appointed to the board of Trustees of the SMC.
The study I linked to found enterovirus infection was linked to tic disorders; so there is no proven direct link between enterovirus and OCD /...
Enteroviruses, one of the main viruses linked to ME/CFS, have recently been associated with tic disorders, and tic disorders themselves often come...
I don't know the exact circumstances, and I think timing of events is important in allocating cause: if these patients were stable for many years...
Separate names with a comma.
