1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 3rd March 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Search Results

Search Again
Page 4 of 27
  1. Amw66
    Post

    General disability advocacy social media posts worth highlighting

    Crutches and Spice is excellent Media communications are her speciality , so Instagram and tiktok is where many pick up info, but she blogs too...
    Post by: Amw66, Aug 30, 2023 in forum: General disability topics and advocacy
  2. Amw66
    Post

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    And moving into other areas quite quickly thanks to changing climate
    Post by: Amw66, Aug 29, 2023 in forum: General ME/CFS news
  3. Amw66
    Thread

    Research into formation of ribosomes

    https://scitechdaily.com/new-research-sheds-light-on-the-formation-of-one-of-natures-most-fundamental-molecules/ Interesting as suggestion that...
    Thread by: Amw66, Aug 29, 2023, 0 replies, in forum: Other health news and research
  4. Amw66
    Post

    Forbes: Public Pushes Back On CDC’s Plan To Weaken Infection Control

    Lipkin
    Post by: Amw66, Aug 28, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  5. Amw66
    Post

    Investigating the factors associated with meaningful improvement on the SF-36-PFS ... young people, 2023, Crawley et al

    Does the increase in home tuition tally with the drop out rate? So getting worse but still in education of some sorts
    Post by: Amw66, Aug 26, 2023 in forum: ME/CFS research news
  6. Amw66
    Post

    Investigating the factors associated with meaningful improvement on the SF-36-PFS ... young people, 2023, Crawley et al

    From memory this teams' definition of PEM is not wonderfully accurate. There is never any acknowledgement of key issues in paediatrics. the...
    Post by: Amw66, Aug 25, 2023 in forum: ME/CFS research news
  7. Amw66
    Post

    Investigating the factors associated with meaningful improvement on the SF-36-PFS ... young people, 2023, Crawley et al

    Were the participants asked ?
    Post by: Amw66, Aug 25, 2023 in forum: ME/CFS research news
  8. Amw66
    Post

    All-or-Nothing Behavior and Catastrophic Thinking Predict Fatigue in Inflammatory Bowel Disease: A Prospective Cohort Study 2023 Moulton Chalder et al

    How long before " predictive coding" becomes part of this teams' vocabulary?
    Post by: Amw66, Aug 25, 2023 in forum: Other psychosomatic news and research
  9. Amw66
    Post

    Do the findings in LC suggest two distinct phases for ME/CFS onset?

    Yes, I think true convalescence may make a huge difference. I often wonder where we would be if we hadn't followed the " Bath activity sheets" in...
    Post by: Amw66, Aug 24, 2023 in forum: Possible causes and predisposing factor discussion
  10. Amw66
    Post

    Functional neurological disorder: new subtypes and shared mechanisms, 2022, Hallett, Dworetzky, Stone et al

    Ah so patients are all Buddhist monks ... ( power of mind over physical )
    Post by: Amw66, Aug 23, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Amw66
    Post

    Protocol Genetic and Metabolic Markers of BH4 Deficiency in Long COVID - OMF

    Does this mean it's not doing what it's meant to be doing and thus is in serum when it shouldn't be ( a bit like functional B12 deficiency)?...
    Post by: Amw66, Aug 23, 2023 in forum: Long Covid research
  12. Amw66
    Post

    UK doctors knowledgeable in ME/CFS?

    Yep. She's active with longcovidkids and has been great at awareness raising . Need many more like her .
    Post by: Amw66, Aug 22, 2023 in forum: UK clinics and doctors
  13. Amw66
    Post

    Protocol Genetic and Metabolic Markers of BH4 Deficiency in Long COVID - OMF

    From memory BH4 synthesis is folate dependent , so SNPs on MTHFR can affect the amount of BH4 ( also impacts methionine and SAMe) Not so simple.
    Post by: Amw66, Aug 22, 2023 in forum: Long Covid research
  14. Amw66
    Post

    UK doctors knowledgeable in ME/CFS?

    Dr Claire Taylor in Dundee has made long COVID a specialism. Given the huge symptom overlap she does take on ME/CFS patients . I have heard some...
    Post by: Amw66, Aug 22, 2023 in forum: UK clinics and doctors
  15. Amw66
    Post

    Functional Neurological Symptom Disorder: A Continuing Conundrum for the Perioperative Physician, 2023, Chin and Kumaraswami

    It would be interesting if there were a male comparative case to see if the same procedures and diagnosis were found. Sorry, but being female is...
    Post by: Amw66, Aug 20, 2023 in forum: Other psychosomatic news and research
  16. Amw66
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    None here either I was hugely concerned about this 6 years ago - in reality that's not been a bad thing at all ..
    Post by: Amw66, Aug 19, 2023 in forum: News from organisations
  17. Amw66
    Post

    Newly uncovered biochemical and functional aspects of ferritin, 2023, Yanatori et al.

    My carer aunt has high ferritin and anaemia . Iron supplementation has made a huge difference to her health which she notices almost immediately...
    Post by: Amw66, Aug 17, 2023 in forum: Other health news and research
  18. Amw66
    Post

    Long Covid in the media and social media 2023

    Practically the general definition of a teenager' s diet Given the physical and emotional changes it doesn't seem surprising that there are...
    Post by: Amw66, Aug 14, 2023 in forum: Long Covid news
  19. Amw66
    Post

    Endoscopy - sedation ?

    Thanks @Binkie4
    Post by: Amw66, Aug 14, 2023 in forum: Gastrointestinal and Urinary
  20. Amw66
    Post

    Endoscopy - sedation ?

    Thanks @SunnyK . The procedure was postponed twice , so happened in June . The procedure went ok. The nurse could see my daughter was uptight and...
    Post by: Amw66, Aug 14, 2023 in forum: Gastrointestinal and Urinary
Showing results 61 to 80 of 536 Next >
Search Again
Page 4 of 27