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  1. Amw66
    Post

    The Effects of Tailored Energy Preservation Training on Fatigue and Re-admission in Patients with Heart Failure: A Randomized Clinical Trial

    It would be interesting to see how social support could be part of this. I imagine ( but could be very wrong ) that family / societal support is...
    Post by: Amw66, Apr 12, 2023 in forum: Other health news and research
  2. Amw66
    Post

    Long Covid in the media and social media 2023

    Cognitive impacts from mild COVID infection ... [MEDIA]
    Post by: Amw66, Apr 12, 2023 in forum: Long Covid news
  3. Amw66
    Post

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    I don't think it's insignificant that the organisations picking up long COVID implications / extent recently were insurers. This is groundhog Day .
    Post by: Amw66, Apr 9, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Amw66
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Depending on FOI data could this get a " lift" from ME awareness day media reporting ?
    Post by: Amw66, Apr 9, 2023 in forum: News from organisations
  5. Amw66
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    We're in Scotland and there is no SIGN for ME/CFS - a form of clinical guidelines . Advice is to follow NICE guidelines , however there is no...
    Post by: Amw66, Apr 8, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  6. Amw66
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Sadly, until all medics have some form of education re ME/ CFS this is all but guaranteed to continue. Unless you yourself or a loved one have...
    Post by: Amw66, Apr 8, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  7. Amw66
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thank you.
    Post by: Amw66, Apr 8, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  8. Amw66
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thank you. She didn't expect much , but there's always a glimmer of hope that it might be different.
    Post by: Amw66, Apr 8, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  9. Amw66
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    So so concerning and depressing. Recent rheumatology appointment was a gold plated exercise in gaslighting. Daughter pulled up for having a stick...
    Post by: Amw66, Apr 5, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  10. Amw66
    Post

    Trial Report Possible Markers For Myalgic Encephalomyelitis / CFS Developed In Long Covid: Utility Of Serum Ferritin And Insulin-like Growth Factor-I,2023,Yamamoto

    Non ME aunts ferritin is currently 660mcg/L. She had bloods done last week and they have been repeated so will see if it's confirmed next week....
    Post by: Amw66, Apr 2, 2023 in forum: ME/CFS research
  11. Amw66
    Post

    Is severe tiredness 'chronic fatigue' or something else? : Story by Dr Martin Scurr

    They are here
    Post by: Amw66, Mar 30, 2023 in forum: General ME/CFS news
  12. Amw66
    Post

    Rheumatology appointment - queries

    Thank you
    Post by: Amw66, Mar 27, 2023 in forum: Fibromyalgia and Connective Tissue Disorders
  13. Amw66
    Post

    Endoscopy - sedation ?

    Thanks for this - very useful . It's an upper endoscopy which may take a biopsy ( as I currently understand it , there is a patient info leaflet...
    Post by: Amw66, Mar 27, 2023 in forum: Gastrointestinal and Urinary
  14. Amw66
    Post

    Endoscopy - sedation ?

    Thanks @Arnie Pye .
    Post by: Amw66, Mar 27, 2023 in forum: Gastrointestinal and Urinary
  15. Amw66
    Post

    Endoscopy - sedation ?

    Thank you @Leila
    Post by: Amw66, Mar 27, 2023 in forum: Gastrointestinal and Urinary
  16. Amw66
    Post

    Endoscopy - sedation ?

    Yes, we will thanks for the suggestion
    Post by: Amw66, Mar 27, 2023 in forum: Gastrointestinal and Urinary
  17. Amw66
    Post

    Endoscopy - sedation ?

    Thanks @Sasha My daughter is now 21. She has had swallowing issues but these are a bit better. Anaesthetic worries her a bit. I think her...
    Post by: Amw66, Mar 27, 2023 in forum: Gastrointestinal and Urinary
  18. Amw66
    Post

    Cushing’s Disease Presenting with Functional Neurological (Conversion) Disorder 2023 Ashrafzadeh et al

    Perhaps one for Scott Simpson s medical errors series ?
    Post by: Amw66, Mar 27, 2023 in forum: Other psychosomatic news and research
  19. Amw66
    Post

    Endoscopy - sedation ?

    Thanks @Binkie4 . Good to hear it was not a bad experience. Hopefully it will pan out ok here too.
    Post by: Amw66, Mar 27, 2023 in forum: Gastrointestinal and Urinary
  20. Amw66
    Post

    Endoscopy - sedation ?

    Thank you . Hopefully her experience may be similar
    Post by: Amw66, Mar 27, 2023 in forum: Gastrointestinal and Urinary
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