Oh yeah there is no way. Not even that but most of the effective and good Long Covid advocates insist on calling what they suffer from ME/CFS (an...
I remember once having hopium that all the massive funding cancer got would some day benefit us. I mean, given the absolutely massive numbers it...
Long COVID could become Finland's largest chronic disease, warns minister | Reuters Interesting, I remember 4-5 years ago Finland was pretty...
Shame it didn´t take a global pandemic, but the mishandling of a global pandemic for over 2 years to get some recognition for ME/CFS. My heart...
Their entire strategy has always been lying through their teeth to save their own careers. It's all they care about. They already pretended that...
From https://www.sciencemediacentre.org/expert-reaction-to-nice-draft-guideline-on-diagnosis-and-management-of-me-cfs/ Prof Peter White,...
I agree completely. I know some people are pessimistic about long-covid, but the research situation for ME/CFS is currently so neglectful that it...
Theguardian aticle building on what Andy and Leila referenced...
Insurance companies: Okay, so we've given the patients something cheap yet also worse than nothing in the form of CBT. But how do we further...
They are deliberately lying. These people don't believe in anything other than the advancement of their own careers. I can still remember the...
Yes, it was him. He basically said there's an awful lot of politics involved with ME/CFS which would be unfortunate to get mixed into the debate....
ME/CFS is so controversial after the Danish Health Authority lost their fight with the Danish politicians that ''experts'' now go out of their way...
Very impressive piece. Strongly recommend everyone here read it. Was easily digestible as well
Danish BPS proponents also argue something is wrong in the brain and use it to justify the biology part of the bio-psycho-social model of...
Yeah it's completely intertwined, and the HPV debate is still used as a passive aggressive way to try and label the Danish ME/CFS community as...
Couldn't agree more. No unnecessary concessions. Every time they make the scientifically bogus argument of good experiences we should point out...
Can't remember where I read it, so given I don't have a source let's just called it rumor-based for now. They were completely open and transparent...
https://translate.google.com/translate?sl=da&tl=en&u=http://ugeskriftet.dk/nyhed/soren-brostrom-til-fas-i-har-en-kognitiv-brist-i-forstar-ikke-magt...
It's really impressive how Cochrane manage to dance around the actual problems of their review to avoid damaging their entire brand. The problem...
So this is the crazy thing my parents have guilt tripped me into. By the way two weeks in, still not cured of my ME/CFS :thumbup: No worries...
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