I'm sure that it will be of great use to researchers specialising in fatigue. The recipe for research seems to go 1. Prove that your topic is...
Yes, thank you for asking, @Jonathan Edwards. And yes, definitely worth letting Sonya know that a lot of people think she is doing a good job....
I don't think that (that Incorporated Societies must have a high level of active engagement) is really right. The first bit you quoted is clause...
Re the Regulation 28 report, some excerpts (copy posted above by SuffolkfRes) So, responses due by 3rd December. I don't know if the...
As far as I can see, the abstract is all we have for now. The abstract has a 'provisionally accepted' note on it.
Given this trial was conducted at the Bateman Horne Centre, it is perhaps surprising to not see Lucinda Bateman's name on the study, as I assume...
There's no science in the abstract, it's just an advertorial.
Now 11,836 signatures. It's been wonderful to see the recent increase in support. Thanks very much to the latest supporting organisation:...
They seem to be conflating post-exertional malaise with a worsening of symptoms. They don't seem to have understood what we were saying about...
Certainly, the answer is not making 'all stakeholders happy'. That was clear with the NICE ME/CFS guideline. But having people with a range of...
It doesn't sound as though the modules should be allowed to stand. I don't think we need 'perfect', but something that does not explicitly state...
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I'm not sure that your disability needs to be mysterious, your initial explanation just needs to be short. Something like 'I have a post-viral...
Of course, 'good intentions' and 'meant well' when combined with 'low effort made to actually understand the situation' result in stuff that isn't...
No, she wasn't getting worse, although there were fluctuations. If you were getting worse up until the cyclo started working, then that does...
It is very good. I'm so glad you have a father who understands the situation @Yann04.
I think the trick might be in the word 'specific'. As in: There is no treatment that is specific to ME/CFS. But, (in case you hadn't heard), CBT...
Great analysis Karen. @siobhanfirestone, you are right to point out that the selection criteria for the PACE trial was loose, and that it is...
Yes, it is hard to understand. Just for clarity: The 2021 NICE ME/CFS Guideline is NG206. The 2007 NICE CFS/ME Guideline was CG53. Even the 2007...
I think Sarah is talking mainly about the ME/CFS guidelines having a problem: but my comment about doctors being able to deviate from the...
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