MEAI: Dr H: lead clinicians will be able to draw on other services throughout the hospital as required Coroner refers to someone during the...
MEAI: Dr H: refers briefly to the meeting Dr Strain attended with Devon ICB around the need for commissioning for Severe ME Sibylle Dahrendorf:...
Paul Keeble: C Dr Strain in charge of eLearning. H He is working with NHS England on that package. Steve Fifield: Coroner / Dr Anthony Hemsley...
Jason S: “Because the condition is so variable no admission package has been developed”. This doesn’t make sense. Most very severe ME patients...
MEAI: Coroner asks if there is a way that it could be ensured that if someone with a severe ME who accesses care meets hospital staff who can be...
MEAI continued: Dr H: has thought about training to avoid harm Hospitals are complex places now so range of options available eg a ward that is...
ME Advocates Ireland Coroner understands that if someone like Maeve needed to see a dietician in own home they would now Dr H: the community...
Steve Fifield: Coroner / Dr Anthony Hemsley Coroner not clear who she needs to approach. Believes it needs to be Government. Write to DHSC and...
ME Advocates Ireland: Dr H: only a small number of patients with Severe ME , 5 per year, come into RD&E They have 7 patients on their existing...
ME Advocates Ireland tweeted: Dr H: (gist) Something would need to change to accommodate Severe ME at national level Coroner refers to need for a...
Steve Fifield tweeted: Coroner / Dr Anthony Hemsley What was NHS guidance? Symptom relief, non acute basis. Not severe. Energy management,...
continued Dr H: The consequences were that anyone requiring treatment in Devon they would provide care to there best possible standard With Maeve...
MEAdvocates Ireland tweeted Dr H has stated that the Trust is not commissioned to provide treatment for severe & very severe ME at the time...
I'm not particularly surprised that there would be a mild association between joint laxity (even if it is just one set of joints such as knees or...
Yes, I guess a question is, is the web team generally sloppy, and outdated reviews of all sorts hang around like a bad smell? Or is it just with...
Well yes, we did have post-viral fatigue, at least we assume it was a virus that caused the acute illness. I guess I'm just trying to convey...
Just the other day, I saw a paper reference an earlier version of the review, not the 2019 version, but maybe a 2016 version. I forget where I...
I wasn't suggesting that the three of us in my family definitely had post-viral fatigue, that's why I put the doctor's diagnosis in quotes. Just...
For sure, a desperate need to lie flat is part of my experience of PEM. And there is something about being upright that is a problem, such as...
Link to a video where Merryn's mother talks about the issues Merryn faced getting help with nutrition: Merryn Crofts - media and inquest (link...
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