@bobbler wrote: It remains unclear to me whether Chesley is seeking to achieve a) or b), or something else: a) to crowdsource a single medical...
Thanks for the link, Sly Saint.
Janet Davoe has said on Twitter that she and Ron believe it is too early to do this [the One Name Campaign].
Thank you, Trish. I hope you receive a response. This would have been an ideal space for the Director of this project to have gained feedback in...
I despair of #MEAction. They style themselves as a "grass roots" organisation but we witness them blithely supporting proposals for multiple...
How, though? While OMF, SOLVE M.E. and #MEAction are backing it, for some, that will add a veneer of legitimacy.
There's another site page that is listed on Google, with a Contact box and field for name suggestions, which doesn't appear to display for me when...
Chesley Heymsfield (Campaign & Documentary Director) has a Twitter account for the One Name Campaign, created in April 2023, but no announcement...
It's unconfirmed, but I suspect that the three supporting orgs were approached, initially, for their support and promotion of the film about ME...
Oh, and none of the presenters (of a project that presumes to represent those with Long Covid and other vulnerable patients) were wearing masks at...
Finally had time, last night, to listen to most of the YouTube One Name Campaign launch video. I don't think this "horse with no name" has a leg...
https://keyt.com/news/santa-barbara-s-county/2023/06/12/931046/ "....[Director Chesley Heymsfield] believes long haul or long COVID and illnesses...
Facebook page for...
Note that the term: Post-Acute Infection Syndrome (PAIS) is not an ICD-10-CM Tabular List category, either coded-for or included as a non...
So, this term is already being used by researchers: Post-Acute Infection Syndrome (PAIS) 2023 paper from China:...
For the record, Dr Tedros Adhanom Ghebreyesus on Twitter on August 22, 2020: [IMG]...
But they are heavily promoting it across SM. Given the strength of the criticism they are getting on Twitter today, perhaps they will consider...
Another reply to Solve's post: Dr Elisa Perego @elisaperego78 I want to express my concern at this unilateral campaign, which seems to aim to...
Copies of tweets: Solve ME/CFS Initiative @PlzSolveCFS Last month Solve M.E. CEO Oved Amitay participated in the launch of the One Name Campaign,...
Exactly, it's a dog's breakfast. Or perhaps that should be a lame horse. Until they can set out their stall with clarity, I don't intend to give...
Separate names with a comma.
