Hmm - I think it is worth close studying of the 'view award' section Centralisation of specialist health care services: a mixed-methods programme...
hmm, good catch. I'll be honest I've been waiting for something along these lines because I frankly thought the tactical response to the news...
Yes I’d be interested to hear more about this new pattern vs the symptoms and disability/limitations you are having to navigate @Creekside It’s...
I understand that’s how you felt but I’m not sure describing it as wanting to crawl into bed until the feeling goes away helps but I’m coming...
Nah people early on trying to learn ‘how to manage their health’ - can we please stop using the term pacing as I don’t think it helps us to use a...
this is just 101 in reframing that black is white cognitive dissonance? And using as much ambiguity as possible to make no concrete points there...
Well of course if any of the HCPs who are attached to the clinic aren’t qualified to look at someone’s heart rate, take blood pressure ie ‘do...
A reminder of how the bps (and these allied hcp areas such as rehab) wanting to use the term recovery in a deliberately misleading ie opposite to...
To boot it sounds like we might have physios or OTs or people not either qualified in nor licensed with a professional association and...
I think there is a lot of identity stuff (which we don't have much control of left, given what we've been deliberately targeted with taking so...
I'll add that I guess this is probably the exact really important one point where you have to conclude this is where the need for a new name comes...
these people tend to not be trained in monitoring. I've no idea how forensic their processes are for diagnostics but due to the lack of medical...
I don't think there is even any malice in saying it, and those who don't think theya re doing it for this reason are deluding themselves. the...
to be fair that probably is indeed someone who could teach them a lot. I suspect they have had to literally manage what they can do in a day vs...
But here's the thing, when you are telling someone eg in their early 20s that then they need to start offering some fair lifestyle chances...
Agreed I think it is even more dangerous, and highly deceitful and long-term even more damaging in all ways. The longer and more embedded (so...
indeed and who knows what other bodily things (like other illnesses, or bits of ME/CFS, for example I get skin conditins others get GI symptoms...
I don't think it helps that it is often niche little projects which people assume is a pet theory rather than a game-changer that will at least...
Yep I spent years actually (clearly having been trained into saying it) saying things back to the GP then of 'yess I understand, I certainly...
Just look at how I think* (?) many who end up with a diagnosis of fibro as well often prefer to 'identify' with that vs the ME/CFS (and whichever...
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