and feeling like they will make things better for the next generation too
That’s Bout it. I think only a positive research type thing such as decodeME dud pretty well can unite people in any kind of way
Thank goodness for that last para. The ones before it … well… I’d hope most who read it at the time saw right through that statement to see that...
Ticks all the bbc it’s the start of the new year classics (that horrifying they probably think are ‘good values’)
Masking sounds like it wasn’t controlled fir hence they’ve been taught how to perform fir the clinician then get home and have been exhausted by...
Could you imagine running it as an A/B test of a ted talk video where it’s the exact same paper read out except with one it’s someone dressed up...
I’m reading from it that they’ve lost the alternative offering where they diagnose the actual problem people have and use the best-fit content to...
I don’t know … is one of the eligible activities sending them emails or petitions?
Not only do you need at least that but the CCG (now ICB) used to reject any requests if they didn’t meet their limits which a few years ago was...
Worth also asking said person to describe the last time they had a really bad haircut. And then slowly keeping asking them questions to describe...
I'm relishing doing a full read of this later. I'm assuming it was really someone asking 'but why can't we just....' (ie not really about the...
Thanks for the good summary, it does indeed sound spookily pertinent. It takes me a while sometimes but the penny is now dropping on bits that...
To be fair I don't think the idea of doing this has come from the patient themselves - I'd guess it is a brainchild of either the organisation she...
I agree
Agreed. It would be much more of a shame to eg rush the first stage then realise later on that eg a certain group of pwme hadn't been represented...
I don't think I'm the only one (?) who doesn't just 'like' something as a vote of agreement in general across s4me, I could disagree but find it...
I've just cross-posed on my issues with the term 'pacing' and indeed the suggestion of it. Mentioning that physiosforme seemed to really be...
5. What PwME can do for themselves (pacing?) I'm flagging this but hoping it's just because we are only at the 'got to title it something stage'...
I think we absolutely should be focusing on taking our time to discuss first and thereby get the approach right of what to leave in and out (vs...
I think we should be writing different documents for different audiences. And bearing in mind context. Which is likely to mean very different...
Separate names with a comma.
