To throw in fatiguability, there is a specific 'judder/three tugs' that eg my legs sometimes do when they are 'done' - it was particularly obvious...
have we gotten to the bottom of why this no PEG thing came in, and I mean really - was there some funding thing or was it sold on a waste of money...
The way things have been twisted to be set up removes all the faith in that person and voice over themselves no matter how many times they...
It’s bad enough. What do those facing all this but have no support and find those around them sort of have these it can’t be that bad try this for...
I think that is the thing, that we don't really know when PEM starts. And @AliceLily has some very good posts regarding the rolling PEM and...
Plus we’ve seen enough others in UK hospitals having DOLS etc put on them without that automatically coming with even tackling the feeding...
And me/cfs is 1. plagued by ‘stigma’ , plain underserved dislike, and misinformation that hadn’t been corrected 2. suffers hugely from...
I think @rvallee s point is the most pertinent if there are no guarantees what someone will to do after you sign over your freedom to get your...
How can you tell if one is good or not? I was updating a clinic page the other day with some news I had spotted and the AI bit at the top of...
I'm not sure whether sometimes it is just my being exhausted right now to think through what might be something more complex ie layered bits that...
I read that a bit differently but wasn't on the forum when that happened so hesitated to comment - but I've also read comments saying he wanted...
I like the word concept. It's something I know from science and business, then I've seen it used in the social sciences but not in a...
I think it is worth considering adding the specialism of rehab medicine into the mix. This seems to either come with or have unfortunately...
I wholly agree with the point that you are making being something worth considering. Sadly I think that the most important point to make in our...
I find this an incredibly worrying situation, how this has ended up: It is 1. inappropriate that we've ended up with MEAction having to leave,...
It has a lot of people discussing the correct use of statistics and being able to analyse these things etc.
Nope I think the two important bits of what she did say to focus on are: So some of us might want to be looking at whether we can get radical...
Yeah, someone might want to point her to the thread on EFfRT, or maybe that's why
It is worse. Because the norm with these sorts of things is that you are coming up with 10 measures, and everyone who needs to be around a table...
To be fair, I'm not sure she gets the statistical tests she is citing - so I wouldn't assume that tone on that part is due to her assuming we know...
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