I think there is a sense of if someone is in a conversation and then two plus people ignore you and talk in the third person ‘about you or your x’...
What I do agree with is that somehow we need patients to take control in what that narrative is and to try and get together with consistent...
The biggie is race for life which is cancer research and it became smart when it developed the twist where everyone who signed up got a card for...
To put it out there I think the OMF type thing/size is a game-changer because people could believ it could get somewhere vs smaller I might be...
and those who do so need to be well-informed of or have alternatives that make clear what is genuinely useful for those others in the community...
I just can’t get past people thinking many have any money. Most I know from what I guess is the recent generation (since bps) who have me/cfs...
Just throwing this out there as I had one of those inspiration moments. And this suggestion is more long grass/term and inspired by if there was...
And @rvallee Me too - mines more about really bad timing given other stuff and heakth right atm , so it’s not had my considered time (and won’t...
I also imagine as it’s written down and not a private closed thing like a journal club you’d have to be pretty confident and know how to handle...
In those circumstances it would be useful to have a ‘sticky’ on the top of the thread if it is a researcher on it wanting that feedback but I...
this in itself feels like an area where support on a more national and regional basis could be useful to help those who might be doing somethign...
that circles back a bit to governance. I hope that (but can't work my brain to check it complies today) it's OK to post this, but it makes me...
I’d add in that going public isn’t always safe due to ‘stigma’ (let’s be honest it’s far far bigger than that word implies) for people on an...
Look at this one https://www.ukri.org/news/innovate-uk-invests-3-2m-to-improve-mental-health-services/ scroll down to the funding for immersive...
Is a DCPsych doctorate in counselling psychology and psychotherapy? The Middlesex info suggests it’s a new school (ie dept) but I can’t see a...
Agreed but don’t have the term to suggest I will say that those who try to play down the inferences of the term ‘hypersensitive’ or...
I hate flare it suggests to me just as if my muscles are more achy these days, my sinuses are less under control vs my medication + rinses etc so...
Too true. It can be , although I think others also pick up the habit initially for other reasons / circumstances
Pretty terrifying isn’t it
There’s this weird history of trust the salesman /aspects from the days much of it operated as a business before systems like nhs or science...
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