Oh yes my angel! Please do. I feel like it’s like those articles on ME from 1993. Real historical gems in all their gorey splendour.
What when did that disappear? Is this the same as media articles on long COVID because I think that maybe the one I am thinking of here anyway?...
Thanks for sharing! @Kalliope. Having scanned this it has some really good quotes from the people interviewed. But wee sneaky snarky little bit...
Apparently.
Umm the header image of seated woman hand to head. Does not bode well. That and the fact that it’s the Guardian of BPS asking for your details and...
Yes I agree this was a very promising start. But it’s also true that we don’t know what will happen until it happens. With the best of intentions...
Yes. No, it isn’t.
I’m sure they do realise! Yes exactly it is.
The following is all from memory because I can’t re read the letter so apologies if I am misremembering or misrepresenting. It was in the reply...
You’re not wrong @Sasha that AfME could benefit some help, given they’d not managed to review and update their materials or associations in years...
Yes. I have all kinds of pain and heavy flu symptoms that can hit me almost instantly as well as rapid fatigue which may occur on its own....
My argument wasn’t that patients don’t use those particular terms. Or many others too. It’s that patients in general with many horrible diseases...
:sneaky:
Oh that’s a shame. I was hoping this was a good sign.
I don’t think safeguarding proceedings could reasonably be said to be triggered by patients or carers using the wrong terminology. Especially not...
A term for what may be in one’s boxers. I’m not using the anatomical term because I don’t want someone searching this to find this unserious...
I wouldn’t go for that last acronym if I were you ;)
I don’t think that we can claim that the PACE & Co failures prove that ME is a physical disease. Just that CBT & GET are the opposite of effective...
Yes :)
Yes, best of :emoji_four_leaf_clover: @Oni :hug:
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