I think so.
:heart:
I’ve a tried out a few of these for grocery shopping. I had some thoughts, as far as I can remember very much in line with @Kitty suggested...
Yes. Coercion absolutely. I think that’s a perfect violation of ethics though, so it’d still be a straight no. No to ethical approval at any...
Yeah. When’s that due?
Yes. It’s for anyone with an impairment.
Allies do become members of medical charities. For friends framily, sometimes just because they think it’s important. This is less likely in our...
If we have something demyelinating wouldn’t this have been found before, or would it be hard to find/see?
Probably not because we’re so far off from drugs by not yet having a mechanism that it’s just not so much of a realistic possibility. Well I...
Better drugs coming down the pipeline?
I filled in the survey. The age shift post 2021 is interesting.
I agree. However the only severity point at which a person with ME could actually be more cautious in a way that fell below their hard limits...
Glad you’re strong now :) I didn’t read @Trish s words on this as being related to whether or not people with ME can build fitness without...
I feel like it was also over diagnosed once a certain CFS ago by doctors who didn’t believe in it either. A pat on the head to the patient and nod...
If I wasn’t on here I perhaps wouldn’t have noticed decode ME happening. It’s demoralising to try to keep track of what’s happening in ME world...
Good question @Sasha. I don’t know if we know the numbers of us out there. I have supported both of main charities in the past because I thought...
Thanks so much for sharing all this information and detail @obeat! I feel inspired to try and write something for myself incase I have to stay...
Same.
That’s brilliant @Trish Very helpful summary explainer to give to all the people who don’t understand what ME is and why it’s so difficult to manage.
What a tragedy. The people leaving their money to the charity maybe weren’t even aware of its failings.
Separate names with a comma.
