It is wonderful :) The amazingly shocking thing is that it is NIH, i.e US, funded. And yet our 'under the influence' ministerial response to the...
I spoke to my physician about the inversion table. He's considering a type of cortisol/one to increase plasma production by the liver based on my...
Fair enough and makes sense :)
Why were you worried? I have a lovely person from them coming out to me soon :)
Before anyone thinks my sympathy for the charities means that I don't see the human damage of the recent articles, I have been badly hurt myself...
Firstly, I think all that ME Action and the ME Association are generally doing a fantastic job. Truly. The MEA response to Dr Potter's article was...
He is setting the scene and building a narrative, with good advice in my view. He should have no interest in actual conversation. He should take...
Thank you everyone. Really good to share notes with more experienced pwMEs. Some of the humour made me smile - a thanks also for that :))))
Hello Has anyone else any experience of inversion tables? I find them beneficial in a way that I find difficult to explain - general reduction in...
Just saw this, while looking for related advice. The most solid definite advice I've come across again and again is to eat resistant...
That's what I thought.... Own goal, or is the wording smart-enough doublespeak?
Wow. How depressingly disappointing.
I wanted to point a condescendingly obvious point. I have no illusions about the practicalities of running charities as going concerns that...
Correct me if I misunderstand, A4ME is then represented more than once on IAFME, via their own position and their membership of Forward ME, no?...
Dangerous territory... Unless compelled, why would you want to do this? Even if compelled, there is adequate medico-lega grounds to refuse.
Hello Has anyone ever engaged in microbiome testing to explore comorbidities / alternative causes for CFS symptoms? I'm interested generally,...
This thread is inspirational. Disgraceful that it is necessary. But brilliantly done. Thank you again @Trish. So very much. I keep sticking my...
Exactly. There will not be a single NICE guideline, for example, for any illness of any kind that says 'do this to the patient, even if they give...
Honest question to all you more seasoned MEers than me.... It is a loaded question, because I have a view about A4ME, but I'm wondering what...
Thank you! Good luck with the letter. The people who broke me in two when I was newly ill last year were armed with their publications....
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