I've done lots of sharing of DecodeME to groups on Facebook. I thought I would try out a different tactic by tagging people and encouraging people...
A version of this has now been published:...
https://www.energysavingselfcare.com/ The cards are not free but she does post some examples on the associated social media pages e.g....
My first cousin once removed, Lyra Chan, is raising money for the (UK) ME Association. Incidentally, I spent a lot of time with her mum (Rachael)...
Good article in terms of explaining the importance of the study and the need for more samples: Ms Chowdhury added: “We hope to better understand...
I think you're the winner. I did get a number of suggestions elsewhere, mainly in reply to my Facebook post: But I think I will go it yours. I...
I went round Facebook and shared the deadline to dozens of groups today. Unfortunately you only reach a small percentage of members of groups with...
ME/CFS ERISA and Individual Disability Income Long Term Disability Insurance Claims By: Barbara B. Comerford, Esq.* The start and end of this...
There was this comment at the end of June: I'm not sure how many people noticed it but I did highlight it in a few places at the time e.g.
"7 Challenging Daily Decisions When You Live With Chronic Illness"...
Also "This Social Security Ruling clarifies our policy on how we develop evidence to establish that a person has a medically determinable...
Social Security Administration: Providing Medical Evidence for Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) This...
It can be useful to get people who are not doctors to write reports about how an illness or disability has affected somebody when applying for...
I put it aside recently to read. I didn’t keep a record of the source but think now it is was from your mailing list for caregivers. :thumbup:
https://www.uptodate.com/contents/patient-perspective-myalgic-encephalomyelitis-chronic-fatigue-syndrome Patient perspective: Myalgic...
Information leaflet on ME/CFS and children/young people either for patients or for doctors? I'm involved in organising a mail-out to GPs. Most of...
I just checked: there is also an extension for Firefox. They are also working on an update for Safari.
I have just gotten around to reading this and found it very good. Just to nit-pick a bit: The PACE Trial was approved for funding in May 2003....
You can get a PubPeer extension for Chrome which highlights when there are responses on PubPeer. See the images attached. I have no idea how many...
PubMed Commons was a great resource for posting such comments. Also comments were prominent as they were on the PubMed website. I spent quite a...
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