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Page 8 of 40
  1. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I just went to look for the PubPeer link where people can post post publication comments and found this one by Peter White (a different Peter...
    Post by: Tom Kindlon, Aug 15, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  2. Tom Kindlon
    Post

    (No discussion) E-letters submitted to JNNP replying to White et al. "Anomalies in the review process & interpretation of the evidence in the NICE..."

    I just found this one by Peter White (a different Peter White to the one who was lead author of the anomalies paper). It starts: The following...
    Post by: Tom Kindlon, Aug 15, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    With 12,900 odd followers I’ve quite a big following and have shared: I saw last week the @mecfsnews account also linked to the thread. The more,...
    Post by: Tom Kindlon, Aug 15, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  4. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    @rvallee has now posted his e-letter here...
    Post by: Tom Kindlon, Aug 15, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  5. Tom Kindlon
    Post

    Open US NIH-funded mega project, All of Us, to characterize and track the health of one million people in the US

    This opportunity is still available. From @MassMECFS e-newsletter Join the All of Us Research Program at NIH The NIH is enrolling 1 million...
    Post by: Tom Kindlon, Aug 13, 2023 in forum: Recruitment into current ME/CFS research studies
  6. Tom Kindlon
    Post

    Severe ME Day, August 8 2023 and Severe ME week

    “In this cool dark room, shielded from the world I think of those who have endured the ultimate tests in life, war, famine, homelessness, natural...
    Post by: Tom Kindlon, Aug 11, 2023 in forum: General ME/CFS news
  7. Tom Kindlon
    Post

    Severe ME Day, August 8 2023 and Severe ME week

    “I'm Katie, I’m 18 and living with Very Severe ME. I live my life in one room, always in my bed. Not leaving it for months at a time. Everything,...
    Post by: Tom Kindlon, Aug 11, 2023 in forum: General ME/CFS news
  8. Tom Kindlon
    Post

    Severe ME Day, August 8 2023 and Severe ME week

    “I have had #severeME for 26 years” “The frustrating thing about sometimes having 30% capacity is that I can do so much more from well-rested but...
    Post by: Tom Kindlon, Aug 11, 2023 in forum: General ME/CFS news
  9. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    New, non-discussion thread I have just set up: (No discussion) E-letters submitted to JNNP replying to White et al. "Anomalies in the review...
    Post by: Tom Kindlon, Aug 10, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  10. Tom Kindlon
    Post

    (No discussion) E-letters submitted to JNNP replying to White et al. "Anomalies in the review process & interpretation of the evidence in the NICE..."

    Francis Ak'enamé
    Post by: Tom Kindlon, Aug 10, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Tom Kindlon
    Post

    (No discussion) E-letters submitted to JNNP replying to White et al. "Anomalies in the review process & interpretation of the evidence in the NICE..."

    [This was initially posted on the JNNP then deleted with the following comment posted...
    Post by: Tom Kindlon, Aug 10, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Tom Kindlon
    Post

    (No discussion) E-letters submitted to JNNP replying to White et al. "Anomalies in the review process & interpretation of the evidence in the NICE..."

    Published: https://jnnp.bmj.com/content/early/2023/07/09/jnnp-2022-330463.responses#shortcomings-in-the-commentary-by-white-et-al Shortcomings in...
    Post by: Tom Kindlon, Aug 10, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Tom Kindlon
    Thread

    (No discussion) E-letters submitted to JNNP replying to White et al. "Anomalies in the review process & interpretation of the evidence in the NICE..."

    Moderator note: This thread is for collecting copies of letters submitted as rapid responses to the article discussed here: Anomalies in the...
    Thread by: Tom Kindlon, Aug 10, 2023, 11 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Tom Kindlon
    Thread

    Trial Report Occupational therapy-based self-management education in persons with post-COVID-19 condition related fatigue, 2023, Hersche

    Free fulltext: https://www.tandfonline.com/doi/full/10.1080/09638288.2023.2242783 Occupational therapy-based self-management education in persons...
    Thread by: Tom Kindlon, Aug 10, 2023, 6 replies, in forum: Long Covid research
  15. Tom Kindlon
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    A short blogpost by a participant: DECODEME STUDY https://lizakarlewriter.wordpress.com/2023/08/04/decodeme-study/
    Post by: Tom Kindlon, Aug 9, 2023 in forum: Recruitment into current ME/CFS research studies
  16. Tom Kindlon
    Post

    Long Covid in the media and social media 2023

    Long covid an 'ongoing and active issue' in Ireland with 200 symptoms https://www.irishexaminer.com/news/spotlight/arid-41200315.html I think...
    Post by: Tom Kindlon, Aug 9, 2023 in forum: Long Covid news
  17. Tom Kindlon
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    I remember seeing a copy of the supposed final Gibson Parliamentary inquiry report. However the final version that came out the next day had...
    Post by: Tom Kindlon, Aug 9, 2023 in forum: News from organisations
  18. Tom Kindlon
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    I wasn’t told directly. A UK advocate posted it to a group for group leaders.
    Post by: Tom Kindlon, Aug 9, 2023 in forum: News from organisations
  19. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I think a good paper to cite on this point is: PACE investigators' response is misleading regarding patient survey results Karen D Kirke. J Health...
    Post by: Tom Kindlon, Aug 8, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  20. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Yes, I remember it was similar with the ME Action UK response where it hadn't been published online on that date but a later date. It may be the...
    Post by: Tom Kindlon, Aug 8, 2023 in forum: 2020 UK NICE ME/CFS Guideline
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