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  1. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Well done to Dom Salisbury, Robert H Saunders & Jonathan CW Edwards on their e-letter, "Shortcomings in the commentary by White et al." which has...
    Post by: Tom Kindlon, Aug 8, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  2. Tom Kindlon
    Thread

    Review Research Insights to Long-COVID (also ME/CFS), 2023, Werner

    Free fulltext: https://urfpublishers.com/open-access/research-insights-to-long-covid.pdf Journal Journal of Advanced Biomedical Engineering...
    Thread by: Tom Kindlon, Aug 8, 2023, 4 replies, in forum: Long Covid research
  3. Tom Kindlon
    Thread

    Review The Microbiome in Post-Acute Infection Syndrome (PAIS), 2023, Guo et al

    https://www.sciencedirect.com/science/article/pii/S2001037023002775 Computational and Structural Biotechnology Journal Available online 5 August...
    Thread by: Tom Kindlon, Aug 8, 2023, 2 replies, in forum: ME/CFS research
  4. Tom Kindlon
    Post

    Severe ME Day, August 8 2023 and Severe ME week

    Post by: Tom Kindlon, Aug 8, 2023 in forum: General ME/CFS news
  5. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Post by: Tom Kindlon, Aug 7, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  6. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Association Chairperson, Vera Kindlon, was one of 55 co-authors of this letter "Global ME community is unified in firm support for the NICE 2021...
    Post by: Tom Kindlon, Aug 7, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  7. Tom Kindlon
    Post

    A general thread on the PACE trial!

    Post by: Tom Kindlon, Aug 6, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Tom Kindlon
    Post

    Australia: News from Emerge Australia

    From their latest newsletter: New online resources for Health Professionals Emerge Australia's Education team has been working hard over the...
    Post by: Tom Kindlon, Aug 5, 2023 in forum: News from organisations
  9. Tom Kindlon
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    From: NIH MECFS Information <NIH-MECFS_INFORMATION at LIST.NIH.GOV> On Behalf Of NIH MECFS Information List Sent: Thursday, August 3, 2023 3:02 PM...
    Post by: Tom Kindlon, Aug 3, 2023 in forum: News from organisations
  10. Tom Kindlon
    Thread

    "Caring for people with ME/CFS who are bedbound" (2023)

    "Caring for people with ME/CFS who are bedbound" (2023) 8-page fact sheet from Emerge Australia...
    Thread by: Tom Kindlon, Aug 2, 2023, 1 replies, in forum: Resources
  11. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Sounds good. Thanks for doing it.
    Post by: Tom Kindlon, Aug 1, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  12. Tom Kindlon
    Post

    Severe ME Day, August 8 2023 and Severe ME week

    One week to go. Hopefully lots will use it as an opportunity to raise awareness and understanding. Some severely affected patients may be...
    Post by: Tom Kindlon, Aug 1, 2023 in forum: General ME/CFS news
  13. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    This response has also not appeared so far on the @JNNP_BMJ site along with one @Joan Crawford submitted
    Post by: Tom Kindlon, Aug 1, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  14. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Very disappointing that 14 days have now passed & this hasn’t been posted by the @JNNP_BMJ Unlike another comment that was removed, this...
    Post by: Tom Kindlon, Aug 1, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  15. Tom Kindlon
    Post

    Well-known, famous people with ME/CFS (public thread)

    Bloom Emerge Australia welcomes recording artist Bloom as our newest Ambassador. https://www.emerge.org.au/people/bloom/
    Post by: Tom Kindlon, Jul 31, 2023 in forum: General ME/CFS discussion
  16. Tom Kindlon
    Post

    Persistent endothelial dysfunction in post-COVID-19 syndrome and its associations with symptom severity and chronic inflammation, 2023, Kuchler et al.

    This has now been published. Free fulltext: https://link.springer.com/article/10.1007/s10456-023-09885-6
    Post by: Tom Kindlon, Jul 30, 2023 in forum: Long Covid research
  17. Tom Kindlon
    Post

    Well-known, famous people with ME/CFS (public thread)

    This article doesn't include that many details Casey Stoner provides health update on chronic fatigue issues...
    Post by: Tom Kindlon, Jul 30, 2023 in forum: General ME/CFS discussion
  18. Tom Kindlon
    Post

    Well-known, famous people with ME/CFS (public thread)

    A light-weight article about Martine McCutcheon sharing on Instagram that she had suffered a big flare up of her #CFS lately....
    Post by: Tom Kindlon, Jul 30, 2023 in forum: General ME/CFS discussion
  19. Tom Kindlon
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    First time I recall seeing a one-page sheet like this: "ME/CFS* IN PRIMARY CARE: Guide to Assessment and Management" *Myalgic Encephalomyelitis /...
    Post by: Tom Kindlon, Jul 29, 2023 in forum: General Advocacy Discussions
  20. Tom Kindlon
    Thread

    Hypothesis The Potential Role of Ocular and Otolaryngological Mucus Proteins in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, 2023, Craddock et al

    The Potential Role of Ocular & Otolaryngological Mucus Proteins in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Free full text...
    Thread by: Tom Kindlon, Jul 29, 2023, 5 replies, in forum: ME/CFS research
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