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  1. Suffolkres
    Post

    UK - Discussion of how many patients use NHS ME/CFS clinics

    The stats are released by the provider ( East Coast Community Health) to the Commissioning and Contacts team who copy us in- under out Terms of...
    Post by: Suffolkres, Nov 7, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  2. Suffolkres
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    So it was definitely worth the phone call to the RCP lady on the day of the interviews it seems..... Great news!
    Post by: Suffolkres, Nov 7, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  3. Suffolkres
    Post

    UK - Discussion of how many patients use NHS ME/CFS clinics

    Our persistence and complaints +pressure has resulted in the service now doing 15-20 domiciliary visits a month rather than 34 a year. Terry...
    Post by: Suffolkres, Nov 5, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Suffolkres
    Post

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    I agree entirely , it the proverbial "sheep" and "goats' all lumped together; Me?CFS/ vague "fatiguers"........ Likewise EC and the school...
    Post by: Suffolkres, Nov 4, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  5. Suffolkres
    Post

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    Barbieloo‏ @BarbR666 3m3 minutes ago Replying to @b_m_hughes International Practitioner Health Summit 2018 The Wounded Healer - S Stevens, Chief...
    Post by: Suffolkres, Nov 3, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Suffolkres
    Post

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    https://kclpure.kcl.ac.uk/portal/kimberley.goldsmith.html Dr Kimberley Goldsmith Senior Lecturer Dr Kimberley Goldsmith Research interests My main...
    Post by: Suffolkres, Nov 2, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  7. Suffolkres
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    At the end of the day, any "arms length " non government department will bow to others in the pecking order of NGD- NHS England, NHS Improvements...
    Post by: Suffolkres, Nov 1, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  8. Suffolkres
    Post

    NICE to update guidelines for MS - Oct 2018

    IAPT £££££££ here we come........
    Post by: Suffolkres, Nov 1, 2018 in forum: Other health news and research
  9. Suffolkres
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    There is another issue here. Many of the clinics/ME providers are no longer "NHS" .......but CIC's Community Interest Companies, Federations of...
    Post by: Suffolkres, Nov 1, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  10. Suffolkres
    Post

    Backbench Business Committee for next Parliament debate

    I agree! And the clip about the fate of children with chronic conditions like M E EDS etc has been sent to the Suffolk Safeguarding Children's...
    Post by: Suffolkres, Oct 31, 2018 in forum: General ME/CFS news
  11. Suffolkres
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Below is a link to a video of the Backbench Business Committee today. At 14:42 you can see Carol Monaghan et al asking for a debate about ME in...
    Post by: Suffolkres, Oct 30, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  12. Suffolkres
    Post

    UK Royal College of Physicians - doctor recruitment blunder, May 2018

    https://www.bmj.com/content/331/7521/910 A History of the Royal College of Physicians of London, volume four (1948-1983) If ever there was a...
    Post by: Suffolkres, Oct 30, 2018 in forum: Other health news and research
  13. Suffolkres
    Thread

    UK Royal College of Physicians - doctor recruitment blunder, May 2018

    Moderator note: This thread has been split from: NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been...
    Thread by: Suffolkres, Oct 30, 2018, 3 replies, in forum: Other health news and research
  14. Suffolkres
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    This was quite powerful I feel ..........
    Post by: Suffolkres, Oct 30, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  15. Suffolkres
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I disagree Barry as leopards oft don't change their spots...
    Post by: Suffolkres, Oct 29, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  16. Suffolkres
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Oh my word... "rampant ME Association!!!"" MEA might need to respond to this or Forward ME? that and the transcript of the 1999 Panorama with...
    Post by: Suffolkres, Oct 29, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  17. Suffolkres
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    "The Merry Go Round I got sent to neurology and he sent me back to orthopaedics and orthopaedics were the ones that referred me to neurology in...
    Post by: Suffolkres, Oct 28, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  18. Suffolkres
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Glad to hear this......... but why so much procrastination and intrigue from RCP and NICE? Or should one not ask............? One a small victory...
    Post by: Suffolkres, Oct 27, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  19. Suffolkres
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    This is the article I meant to upload. https://www.theguardian.com/theguardian/1999/oct/30/weekend7.weekend1
    Post by: Suffolkres, Oct 23, 2018 in forum: ME/CFS research news
  20. Suffolkres
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    So sorry. I lost a friend ( healthy) who was on a drug trial in 1980's when he was a scientist at Glaxos....( he was short of cash)... he became...
    Post by: Suffolkres, Oct 23, 2018 in forum: ME/CFS research news
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