An excellent letter and summary of where things currently stand. Do we have permission to use this with our local Community Engagement...
"......different pile from people with my specific presentation of symptoms>" Sheep or goats...?
I wonder if @JonesyJ49 is friend or foe?......... is it the very same who was caught defaming Dr Sarah Myhill for Queen's Essex? She did mange to...
I was a"registered Stakeholder in 2017 and responded to Public Consultation . I was registered again in January to attend the engagement meeting....
A local "rabblerouser" (but very gently, diplomatic and subtle) and an advocate for all things complex and intermingled (ME/CFS/EDS?POTS), has...
That's because it "downloads" as a docx file- that's .docx for you- lack of compatibility in my experience.
I think we should seen the draft notes recorded by the 6 table note takers (Royal College lady in my case) BEFORE it is submitted for...
Email sent, "Good morning Joshua, In order to provide feedback for my organisation LocalME, it would be helpful to have the powerpoint and...
It is puzzling, especially as the DWP "contribution" and involvement is not stated. So could the DWP bit be part of this or in addition.....?
Nothing wrong in being a pedant! I hope, ill informed I am not....... I think actually "Chandler" was a Freudian slip? Chandler, a peddler of...
Thought the grant information was interesting....... https://impact.ref.ac.uk/CaseStudies/CaseStudy.aspx?Id=41185 22: Improved evaluation and...
FYI https://academic.oup.com/occmed/article/65/1/86/1433061 The Chalder Fatigue Scale (CFQ 11) Craig Jackson Occupational Medicine, Volume 65,...
There is a rider on top of a very badly trained and viscous horse. It's kicked and bitten before. My sentiment completely and, if we ask who this...
Objective outcome measures and "fatigue scales"- In our group I suggested that BACME acolytes and our local service, used the "Chandler Fatigue...
Page two of the slide presentations issued to us on Friday; What does the scope do? Ensures the guideline addresses the key areas of variation...
Point taken, It's just that we have been asked who was there (mainly which professionals).
We had Dr Kelly Morris who I think said she works with GM and is involved with BACME? I think GB Cliunic has been axed anyway? Ist job is to...
LOve the analogy. .....massing for an attack? I have had ducks, unlike chickens, ducks sh*t all over the place, thereby making the pond and...
Being ....dumped is actually the better option. Yes indeed and less FII "risk" or "mum blame"...... Been there and have the tee-shirt- 2000 I was...
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